Advancing Patient Care Through the Consortium of Eosinophilic Gastrointestinal Disease Researchers

Recent advances in rare diseases research are accelerated by the work of consortia that have been supported by the National Institutes for Health. Development of such consortia rely on multi-disciplinary relationships and engagement with patient advocacy groups as well as the NIH, industry and academic partners. In this Rostrum, we present the development of such a process that focuses on eosinophilic gastrointestinal diseases (EGIDs). Principal investigators, patient advocacy groups, research assistants and trainees work together to perform natural history studies that promote clinical trial readiness tools, conduct clinical trials, train a new generation of investigators and perform innovative pilot studies.
Source: Journal of Allergy and Clinical Immunology - Category: Allergy & Immunology Authors: Source Type: research