Discussing sudden unexpected death in epilepsy with children and young people with epilepsy and their parents/carers: a mixed methods systematic review

ConclusionThis review confirms that healthcare professionals should discus SUDEP with CYPwE and/or their caregivers at or around the time of diagnosis and that the discussion should include prevalence of SUDEP, risk factors and risk reduction methods relative to the individual concerned. Apart from delivering SUDEP information face-to-face, with written or online information provided to reinforce messages, there is a lack of evidence on “how” to impart this sensitive information. Further research exploring the most acceptable and effective methods of discussing SUDEP with CYPwE and their caregivers is therefore indicated.

Source: Seizure - October 14, 2019 Category: Neurology Source Type: research