3.38 pediatric quality-of-life inventory in fragile x syndrome

Individuals with fragile X syndrome (FXS) often present to clinical settings for numerous concerns, including intellectual disability (ID), hyperarousal to sensory stimuli, anxiety, aggression, sleep issues, hyperactivity, and social and communication difficulties, among other concerns. These common clinical issues associated with FXS can have a lifelong impact on the affected child, parent(s), and the overall well-being of the family of the child. Thus, the severity of these clinical issues and, in turn, the quality of life (QoL) of the child and family, may be important outcome measures following intervention.
Source: Journal of the American Academy of Child and Adolescent Psychiatry - Category: Psychiatry Authors: Source Type: research