Cancer survivor perspectives on sharing patient-generated health data with central cancer registries

ConclusionsOur results suggest that registry-based collection of PGHD is acceptable to most cancer survivors and could facilitate registry-based efforts to collect PGHD/PROs. Central cancer registry-based collection of PGHD/PROs, especially on long-term effects, could enhance registry support of cancer control efforts including research and population health management.
Source: Quality of Life Research - Category: Health Management Source Type: research