Share and protect our health data: an evidence based approach to rare disease patients ’ perspectives on data sharing and data protection - quantitative survey and recommendations
The needs and benefits of sharing health data to advance scientific research and improve clinical benefits have been well documented in recent years, specifically in the field of rare diseases where knowledge ...
Source: Orphanet Journal of Rare Diseases - Category: Internal Medicine Authors: Sandra Courbier, Rebecca Dimond and Virginie Bros-Facer Tags: Research Source Type: research
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