Position statement on access to care in rare liver diseases: advancements of the European reference network (ERN) RARE-LIVER

The European Reference Network for rare liver diseases (ERN RARE-LIVER) is a Europe-wide network of paediatric and adult hepatologists from expert centres in close collaboration with patient advocates from the...

Source: Orphanet Journal of Rare Diseases - July 8, 2019 Category: Internal Medicine Authors: Lucas H. P. Bernts, David E. J. Jones, Marleen M. Kaatee, Ansgar W. Lohse, Christoph Schramm, Ekkehard Sturm and Joost P. H. Drenth Tags: Position statement Source Type: research