Secondary findings from next generation sequencing: Psychological and ethical issues. Family and patient perspectives.

In conclusion, individual experience and life context (circumstances) were decisive in participants' expectations and fears regarding access to SF. Additional longitudinal studies based on actual SF disclosure announcements are needed to establish future guidelines.
PMID: 31265899 [PubMed - as supplied by publisher]

Source: European Journal of Medical Genetics - June 28, 2019 Category: Genetics & Stem Cells Authors: Houdayer F, Putois O, Babonneau ML, Chaumet H, Joly L, Juif C, Michon CC, Staraci S, Cretin E, Delanoue S, Charron P, Chassagne A, Edery P, Gautier E, Lapointe AS, Thauvin-Robinet C, Sanlaville D, Gargiulo M, Faivre L Tags: Eur J Med Genet Source Type: research