De-duplicating patient records from three independent data sources reveals the incidence of rare neuromuscular disorders in Germany
Estimation of incidence in rare diseases is often challenging due to unspecific and incomplete coding and recording systems. Patient- and health care provider-driven data collections are held with different or...
Source: Orphanet Journal of Rare Diseases - Category: Internal Medicine Authors: Kirsten K önig, Astrid Pechmann, Simone Thiele, Maggie C. Walter, David Schorling, Adrian Tassoni, Hanns Lochmüller, Clemens Müller-Reible and Janbernd Kirschner Tags: Research Source Type: research
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