Psychosocial determinants associated with quality of life in people with usher syndrome. A scoping review.

Psychosocial determinants associated with quality of life in people with usher syndrome. A scoping review. Disabil Rehabil. 2019 Apr 12;:1-12 Authors: Arcous M, Putois O, Dalle-Nazébi S, Kerbourch S, Cariou A, Ben Aissa I, Marlin S, Potier R Abstract BACKGROUND: In Usher syndrome, deafness is congenital and blindness is acquired. Therefore, the progressive loss of one of the two senses forces individuals with this syndrome to reorganize their everyday tasks and relationships, creating new strategies to communicate, access information, and move within a given space. This reorganization can interfere with the subjects' capacity to build a good quality of life. METHODS: We conducted a scoping review of both peer-reviewed and gray literature, to identify existing evidence of the role of psychosocial determinants on the quality of life of people with Usher syndrome. RESULTS: Twenty-one references met the inclusion criteria. Findings suggest that people with Usher syndrome seem to adjust their life habits to their condition, maintaining hope for the future, and believe in their capacities to accomplish their goals in spite of the various difficulties they encounter. However, this scoping review highlights a lack of research on adaptive strategies, as well as a lack of knowledge concerning the integration of the syndrome in one's identity, the relations to caregivers, and the specificities of the psychotherapeutic support. More information on t...
Source: Disability and Rehabilitation - Category: Rehabilitation Authors: Tags: Disabil Rehabil Source Type: research

Related Links:

Hello all! I am a current second-year medical student interested in pursuing the 6 year residency in Neurodevelopmental Disabilities. I have a younger sister with Down's syndrome and have taught swimming to children with special needs and worked for many years at summer camps for children with special needs. Working with kids with complex neurodevelopmntal disabilities and their families is my passion. During my med school studies, I have found great interest in neurology as well. I am... What separates Neurodevelopmental Disabilities(NDD) from Developmental-Behavioral Pediatrics?
Source: Student Doctor Network - Category: Universities & Medical Training Authors: Tags: Pediatrics Source Type: forums
CONCLUSIONS In this Caribbean population, uncontrolled asthma was independently associated with obesity, late-onset disease, and comorbidities of sleep apnea and depression. Poor asthma-related quality of life was independently associated with Indo-Caribbean ethnicity. PMID: 32493146 [PubMed - as supplied by publisher]
Source: Journal of Asthma - Category: Respiratory Medicine Tags: J Asthma Source Type: research
The objective of this study was to provide an overview of whether adherence to brain trauma foundation (BTF) guidelines improved outcomes following TBI utilizing intracranial pressure (ICP) monitoring. Methods: This cohort study between 2000 and 2013 involved 1848 patients who sustained severe blunt TBI. Outcomes were correlated with whether or not ICP monitoring was utilized based on BTF guidelines. Results: The BTF guideline adherence rate for utilizing ICP monitoring in patients with TBI was 30% in 1848 patients. Adherence rates positively correlated with younger age, high injury severity scores, lower Glasgow C...
Source: Surgical Neurology International - Category: Neurosurgery Tags: Surg Neurol Int Source Type: research
Publication date: August 2020Source: Research in Developmental Disabilities, Volume 103Author(s): Ines Van keer, Nadja Bodner, Eva Ceulemans, Karla Van Leeuwen, Bea Maes
Source: Research in Developmental Disabilities - Category: Disability Source Type: research
Publication date: August 2020Source: Research in Developmental Disabilities, Volume 103Author(s): Esther Adi-Japha, Gitit Brestel
Source: Research in Developmental Disabilities - Category: Disability Source Type: research
Publication date: Available online 4 June 2020Source: Progress in NeurobiologyAuthor(s): Elisa Cainelli, Filippo Arrigoni, Luca Vedovelli
Source: Progress in Neurobiology - Category: Neuroscience Source Type: research
Authors: Du WJ, Wang J, Wang Q, Yuan LJ, Lu ZX Abstract Context/objective: At present, there is no consensus on the most effective surgical method for treating symptomatic lumbar spinal stenosis (LSS). Total laminectomy, which is frequently used at this time, destroys the posterior midline structure, causing many postoperative complications. We have designed a new surgical approach instead of total laminectomy. In this paper, we aimed to describe the surgical method of endoscopic modified total laminectomy for lumbar spinal stenosis as well as to explore its early efficacy.Participants: Patients with symptomatic LS...
Source: Journal of Spinal Cord Medicine - Category: Orthopaedics Tags: J Spinal Cord Med Source Type: research
Conclusion: This study concluded that the knowledge level of college students on Alzheimer's disease is below moderate. The findings concluded that there is association between faculty and knowledge score. PMID: 32494366 [PubMed]
Source: International Journal of Alzheimers Disease - Category: Geriatrics Tags: Int J Alzheimers Dis Source Type: research
Conclusion: Thus, the results obtained in the NHS reinforce the planning of preventive strategies considering the functional dependence.RESUMO: Objetivo: O objetivo do estudo foi verificar a associa ção entre os tipos de dependência para as atividades básicas e instrumentais de vida diária e a ocorrência de quedas de idosos. Metodologia: Estudo transversal, de base populacional, com a utilização dos dados de 23.815 idosos, extraídos da Pesquisa Nacional de Saúde (PNS) de 2013. A PNS , realizada pelo Instituto Brasileiro de Geografia e Estatística (I...
Source: Revista Brasileira de Epidemiologia - Category: Epidemiology Source Type: research
Conclusion : at long term, the outcome for PRC remains stable despite some series recently reported worsening of the results due to progressive degenerative arthritis. PRC seems to yield comparable clinical results compared to 4CA but a slightly better range of motion than 4CA. PMID: 32490786 [PubMed - in process]
Source: Acta Orthopaedica Belgica - Category: Orthopaedics Tags: Acta Orthop Belg Source Type: research
More News: Audiology | Blindness | Deafness | Disability | Eyes | Genetics | Opthalmology | Rehabilitation | Usher Syndrome