Digital Interventions to Build a Patient Registry for Rheumatology Research

This article aims to describe key issues, processes, and outcomes related to development of a patient registry for rheumatology research using a digital platform where patients track useful data about their condition for their own use while contributing to research. Digital interventions are effective to build a patient research registry for people with rheumatoid arthritis and other rheumatic and musculoskeletal diseases. ArthritisPower provides evidence of the value of digital interventions to build community support for research and to transform patient engagement and patient-generated data capture.

Source: Rheumatic Disease Clinics of North America - April 3, 2019 Category: Rheumatology Authors: William Benjamin Nowell, David Curtis, Michelle Thai, Carole Wiedmeyer, Kelly Gavigan, Shilpa Venkatachalam, Seth Ginsberg, Jeffrey R. Curtis Source Type: research