Guest post: Hearing from patients on Rare Disease Day

Conversations and healthy debate about issues facing our industry and the health care system are critical to addressing some of today ’s challenges and opportunities. The Catalyst welcomes guest contributors, including patients, stakeholders, innovators and others, to share their perspectives and point of view. Views represented here may not be those of PhRMA, though they are no less key to a healthy dialogue on issues in health care today. In honor of Rare Disease Day, we sat down with Paul Melmeyer of the National Organization for Rare Disorders (NORD) to discuss rare diseases, how we can spur innovation and what can we do to raise awareness.

Source: The Catalyst - February 28, 2019 Category: Pharmaceuticals Authors: Guest Contributor Tags: Rare Diseases FDA Source Type: news