Woman, 30, with cystic fibrosis is disappointed after being denied NHS funding for IVF and surrogacy

Sophie Gannon, from Bexley, South London, had a double lung transplant in 2011. Her and her partner, Josh Thomas, were told they do not fit the funding criteria, and are now fundraising money.
Source: the Mail online | Health - Category: Consumer Health News Source Type: news

Related Links:

AbstractIntroductionThere is a strong association between cystic fibrosis and malnutrition, mainly because of the higher energy needs combined with lower intake. There is also a well-established correlation between good nutritional status and better lung function. To date, however, there are no studies examining nutritional status in childhood and adult lung function. To respond to this need, this innovative study explored the long-term correlations between nutritional status in childhood and lung function in adulthood for the same patient population.MethodsA retrospective patient file study was conducted to identify putat...
Source: Lung - Category: Respiratory Medicine Source Type: research
We present a CF-patient with disseminated Scedosporium apiospermum infection after lung transplantation. The patient had skin, surgical wound, spinal cord, and brain involvements. She recovered fully after prolonged course of voriconazole treatment.
Source: Medical Mycology Case Reports - Category: Biology Source Type: research
We report practice patterns and outcomes for pediatric LTx in CF and non-CF patients.
Source: The Journal of Heart and Lung Transplantation - Category: Transplant Surgery Authors: Tags: 122 Source Type: research
Bacteriophages are host-specific lytic viruses that are of increasing interest as adjunctive therapy for treatment of multi-drug resistant (MDR) pathogens.
Source: The Journal of Heart and Lung Transplantation - Category: Transplant Surgery Authors: Tags: 69 Source Type: research
The primary driver of poor outcomes in the early stages of lung transplantation is primary graft dysfunction (PGD). Patients with cystic fibrosis (CF) have unique physiology and demographics compared to other lung transplant recipients. Therefore, we sought to identify risk factors for PGD in the CF patient population undergoing lung transplantation.
Source: The Journal of Heart and Lung Transplantation - Category: Transplant Surgery Authors: Tags: 342 Source Type: research
Exophiala dermatitidis is a black fungus that frequently colonises the lungs of people with cystic fibrosis (CF). Mucoid and non-mucoid variants can be detected from the same sputum for some patients, but their role in chronic CF lung disease is not fully understood and attempts at early eradication are not routinely performed. Invasive infections with this species are rare; however in 2014 we reported our first case of fatal, invasive infection with a highly mucoid strain of E. dermatitidis in a 34 year old post lung transplant patient with CF.
Source: The Journal of Heart and Lung Transplantation - Category: Transplant Surgery Authors: Tags: 787 Source Type: research
Lung transplantation is an accepted therapy for patients with end stage lung disease due to Cystic Fibrosis (CF). Up to ten percent of patients with CF are colonized with Achromobacter xylosoxidans, a gram negative organism that due to its intrinsic resistance to many antibiotics may affect negatively impact post-transplant outcomes.
Source: The Journal of Heart and Lung Transplantation - Category: Transplant Surgery Authors: Tags: 784 Source Type: research
This study, in a project funded by the Cystic Fibrosis Lung Transplant Consortium, examined candidates understanding and concerns in each of these domains.
Source: The Journal of Heart and Lung Transplantation - Category: Transplant Surgery Authors: Tags: 752 Source Type: research
Distal intestinal obstruction syndrome (DIOS) is a debilitating condition which is unique to Cystic Fibrosis (CF). Constipation is increasingly common in CF patients as a result of the altered fluid composition of the intestine caused by the CF transmembrane conductance regulator gene defect. The incidence of both DIOS and constipation is increased in CF-patients post lung transplant1-2.
Source: The Journal of Heart and Lung Transplantation - Category: Transplant Surgery Authors: Tags: 740 Source Type: research
To identify novel variables associated with waitlist (WL) and posttransplant (PT) mortality for cystic fibrosis (CF) lung transplant patients. To analyze the impact of including new variables in the lung allocation score (LAS) system.
Source: The Journal of Heart and Lung Transplantation - Category: Transplant Surgery Authors: Tags: 844 Source Type: research
More News: Cystic Fibrosis | Funding | Fundraising | Health | Lung Transplant | Transplant Surgery | Transplants