Parental Perception of Quality of Life for Children with Autism Spectrum Disorder

AbstractOur purpose for this study was to investigate how parents of children with Autism Spectrum Disorder (ASD) rate their child ’s quality of life (QOL). We began by developing a parent proxy-report QOL assessment instrument with subscales and then distributed it statewide to parents of children with ASD. The scale demonstrated strong internal consistency with a full-scale Cronbach’s alpha of .835. Our results indicated that 0% of the parents rated their child as having a poor QOL, 66% rated their child as having a good QOL, and 16% rated their child as having an excellent QOL. Our results support the notion that QOL can be assessed in early childhood to develop and ensure effective programing across the lifespan f or an individual with ASD.
Source: Journal of Developmental and Physical Disabilities - Category: Disability Source Type: research

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In this study, we have used a novel DNAzyme based approach to create a larval model of FXS in zebrafish with specific focus on the early developmental window.MethodsFmr1specific DNAzymes were electroporated into embryos to create theknockdown. Changes in RNA and protein levels of FMRP and relevant biomarkers were measured in the 0-7dpf window. Behavioral tests to measure anxiety, cognitive impairments and irritability in the larvae were conducted at the 7dpf stage. Drug treatment was carried out at various time points in the 0-7dpf window to identify the critical window for pharmacological intervention.ResultsThe DNAzyme b...
Source: Journal of Pharmacological and Toxicological Methods - Category: Drugs & Pharmacology Source Type: research
We report here the derivation of familial iPSC lines from two controls and three ASD patients carrying NRXN1α+/−, using a non-integrating Sendai viral kit. The genotype and karyotype of the resulting iPSCs were validated by whole genome SNP array. All iPSC lines expressed comparable levels of pluripotency markers and could be differentiated into three germ layers.
Source: Stem Cell Research - Category: Stem Cells Source Type: research
ConclusionsPrevention efforts to reduce ED utilization, especially for those with ID and ASD with co-occurring psychiatric conditions, is warranted. Primary care providers and case managers should develop care plans to reduce the likelihood for emergency psychiatric utilization and ensure alternative care pathways. ED clinicians may require additional training to address the needs of this population when they present to the ED in crisis.
Source: Research in Autism Spectrum Disorders - Category: Psychiatry Source Type: research
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Source: Journal of Intellectual and Developmental Disability - Category: Disability Authors: Source Type: research
ConclusionsThese data contribute to identifying an early trend of autism spectrum disorder, useful also for pediatricians.
Source: Italian Journal of Pediatrics - Category: Pediatrics Source Type: research
This report condemns the'horrific reality'of conditions and treatment under which many young people with learning disabilities and autism are detained in mental health hospitals,'inflicting terrible suffering on those detained and causing anguish to their distraught families'. It calls for an overhaul of inspections and changes to the Mental Health Act to protect those detained and for the establishment of a Number 10 unit with Cabinet-level leadership to urgently drive forward reform.
Source: Current Awareness Service for Health (CASH) - Category: Consumer Health News Source Type: news
These frameworks describe the skills, knowledge and behaviours needed by health and social care staff, and will be used to inform the development and planning of the current and future workforce.
Source: Current Awareness Service for Health (CASH) - Category: Consumer Health News Source Type: news
Abstract Asperger's Syndrome was introduced as a separate diagnostic category in the DSM-4 (1994). Its subsequent absorption into autism spectrum disorder in the DSM-5 (2013) led to vigorous debate and concerns about the loss of the unique Asperger's identity. Existing research has identified that adults previously diagnosed with Asperger's have expressed a diverse range of opinions regarding the DSM-5 changes. This Australian study explored the role of disability identity development in responses to the change through semi-structured interviews with 12 adults diagnosed with Asperger's under the DSM-4. Their diffe...
Source: Journal of Autism and Developmental Disorders - Category: Psychiatry Authors: Tags: J Autism Dev Disord Source Type: research
This report outlines the development process, content, and global field-testing strategy of the WHO CST program. The CST program is designed to be feasible, scalable, and adaptable and appropriate for implementation in low-resource settings by nonspecialists. The program was informed by an evidence review utilizing a common elements approach and was developed through extensive stakeholder consultation and an iterative revision process. The program is intended for a global audience and was designed to be adapted to the cultural, socioeconomic, geographic, and resource context in which it is used to ensure that it is compreh...
Source: Frontiers in Psychiatry - Category: Psychiatry Source Type: research
BACKGROUND: Children are among the most susceptible groups of family violence and this is an important and worrying issue all over the world. Children with disabilities are more vulnerable to family violence. Children with autism are exposed to various typ...
Source: SafetyLit - Category: International Medicine & Public Health Tags: Age: Adolescents Source Type: news
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