Rett syndrome: Teenagers' and young adults' activities, usage of time and responses during an ordinary week - a diary study.
CONCLUSIONS: Daily and medical health care activities were time consuming. Improved communication between all parties may increase participation and well-being and provide solutions for handling unpleasant activities and sedentary time.
SIGNIFICANCE: A more varied range of activities may improve the everyday life for individuals with Rett syndrome.
PMID: 30663472 [PubMed - as supplied by publisher]
Source: Scandinavian Journal of Occupational Therapy - Category: Occupational Health Tags: Scand J Occup Ther Source Type: research
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