Measurement of Quality of Life in Patients with Mycosis Fungoides/S ézary Syndrome Cutaneous T-Cell Lymphoma: Development of an Electronic Instrument

Conclusions: Empirical evaluation demonstrated strong evidence of excellent psychometric properties. Utilizing a patient-centered measure development approach ensures that this QoL instrument captures the information that is most meaningful and clinically relevant to patients.

Source: Journal of Medical Internet Research - January 7, 2019 Category: General Medicine Authors: Stacey McCaffrey Ryan A Black Mitchell Nagao Marjan Sepassi Gaurav Sharma Susan Thornton Youn H Kim Julia Braverman Source Type: research