Daily Functioning and Quality of Life in Patients with Sj ögren–Larsson Syndrome

Discussion Despite the large disruptions of daily functioning, patients with SLS are according to their parents generally content with their quality of life and participation. There was a broad range in reported problems. We found it very useful to systematically ask parents about their children's feelings and needs, to better understand the meaning of living with a complex disorder like SLS. [...] Georg Thieme Verlag KG Stuttgart · New YorkArticle in Thieme eJournals: Table of contents  |  Abstract  |  Full text

Source: Neuropediatrics - January 4, 2019 Category: Neurology Authors: Staps, Pippa de Groot, Imelda J.M. van Gerven, Marjo H.J.C. Willemsen, Mich èl A.A.P. Tags: Original Article Source Type: research