The PROCLIPI international registry of early ‐stage mycosis fungoides identifies substantial diagnostic delay in most patients

ConclusionsThis confirmed early ‐stage MF cohort is being followed‐up to identify prognostic factors, which may allow better management and improve survival by identifying patients at risk of disease progression. This study design is a useful model for collaboration in other rare diseases, especially where pathological diagnos is can be complex.

Source: British Journal of Dermatology - November 25, 2018 Category: Dermatology Authors: J.J. Scarisbrick, P. Quaglino, H.M. Prince, E. Papadavid, E. Hodak, M. Bagot, O. Servitje, E. Berti, P. Ortiz ‐Romero, R. Stadler, A. Patsatsi, R. Knobler, E. Guenova, F. Child, S. Whittaker, V. Nikolaou, C. Tomasini, I. Amitay, H. Pra Tags: General Dermatology Source Type: research