Development of a Web-Based Educational Program for the Training of BRCA Carriers

We are in an era regarding genetic and molecular testing when it is often insufficient to simply report certain test results to clinicians and their patients. Sophisticated patient education may then be necessary in order for the patient to understand the implications of certain positive lab results. A perfect example of this is the identification of BRCA carriers. Such patients need to be informed about the implications of their genetic status and their possible responsibility to untested blood relatives. A recent paper discussed the development of aFamily Gene Toolkit to achieve such an educational goal (see:Development of a Web-based Family Intervention for BRCA Carriers and Their Biological Relative), Below is an excerpt from this paper:....Carriers of breast cancer gene (BRCA) mutations are asked to communicate genetic test results to their biological relatives to increase awareness of cancer risk and promote use of genetic services. This process is highly variable from family to family. Interventions that support communication of genetic test results, coping, and offer decision support in families harboring a pathogenic variant may contribute to effective management of hereditary cancer....The aim of this paper was to describe the development of the Family Gene Toolkit, a Web-based intervention targeting BRCA carriers and untested blood relatives, designed to enhance coping, family communication, and decision making. ....The Family Gene Toolkit was developed...
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