Cystic fibrosis-related education: Are we meeting patient and caregiver expectations?

Cystic fibrosis (CF) is a complex disease state which requires education related to a variety of topics including lung health, nutrition, treatment, and genetics. Proper management of the CF patient requires thoughtful provision of patient education to both patients and their caregivers. New therapies and improved management have greatly increased life expectancy with the latest reported median survival age reported at 47.7 years [1]. It is therefore imperative that CF education is provided not only to the parents and caregivers of these patients but to the patients themselves.

Source: Patient Education and Counseling - June 9, 2018 Category: International Medicine & Public Health Authors: Kevin P. Lonabaugh, Katherine S. O ’Neal, Heather McIntosh, Michelle Condren Source Type: research