The impact of National Cystic Fibrosis Registries: A review series

It was back in the 1960s, before computers and the internet, when the power of collecting data on individuals with cystic fibrosis (CF) was first recognized. At that time, CF was almost exclusively a pediatric disease; however, with no national database little was known about the characteristics and survival of those living with the disease. In an effort to better understand the CF population, Dr. Warren Warwick was given a grant to collect statistics from several CF centers in the US. From these data Dr.
Source: Journal of Cystic Fibrosis - Category: Respiratory Medicine Authors: Tags: Editorial Source Type: research