Justice and Neurodevelopmental Disability: Moral-Political Philosophies, Policies, and Their Outcomes

Neurodevelopmental disabilities such as cerebral palsy and autism touch a population which has been dubbed to be “doubly vulnerable”. Individuals with neurodevelopmental disability have conditions that impair their cognition, communication, mobility or social interactions and they also rely on others to make decisions on their behalf. Accordingly, these children – as described in other contributions of t his special issue – are particularly prone to suffer from systemic (i.e., social, economic, and political) conditions that give or prevent access to quality and timely healthcare and social services as well as economic opportunities.
Source: Seminars in Pediatric Neurology - Category: Neurology Authors: Source Type: research

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In conclusion, school-aged children with CP very often screened positive for ASD and/or ADHD. The prevalence of ASD and ADHD is most likely underestimated in children with CP. These screening findings require further investigations.
Source: European Child and Adolescent Psychiatry - Category: Psychiatry Source Type: research
(I copiedthis over from my shares feed as it fits better here).My #1 is doing their special Olympics strength training atBuilt on Bravery, located at the Mendota Height MN Lions United Fitness Center (map):Lions United is a new kind of training center, designed specifically to prepare people with disabilities for exceptional performance in individual competitions, team sports and life, especially people with autism, down syndrome and cerebral palsy. We ’re dedicated to Special Olympics’ Project UNIFY and Unified Sports®, which means we bring people of all abilities together to strengthen individua...
Source: Be the Best You can Be - Category: Disability Tags: athletics cognitive impairment exercise Explosive Child health Twin Cities Source Type: blogs
While we all want our children not to have any problems at all, the reality is that life doesn’t always work that way. Many children suffer from some sort of problem, whether it’s something minor and often temporary, like a speech delay, or something more difficult and permanent, like cerebral palsy or autism. Children with problems or disabilities are no less wonderful and deserving than children without. The key to getting them on the right path for the best life possible is identifying those problems and getting help — as early as possible. That’s why it’s important to speak up early. Somet...
Source: Harvard Health Blog - Category: Consumer Health News Authors: Tags: Children's Health Parenting Source Type: blogs
Conclusion: Compared with adults without CP, those with CP have an elevated prevalence of mental health disorders, some of which may be more pronounced in patients with comorbid neurodevelopmental disorders. Primary Funding Source: National Institute on Disability, Independent Living, and Rehabilitation Research. PMID: 31382276 [PubMed - as supplied by publisher]
Source: Annals of Internal Medicine - Category: Internal Medicine Authors: Tags: Ann Intern Med Source Type: research
AbstractBackgroundLower gestational age may increase autism spectrum disorder (ASD) vulnerability; however, the incidence of ASD diagnosis through a direct assessment on every very preterm birth child on the population base remains unclear. Moreover, the behavioral characteristics of preterm birth ASD are unknown.MethodsEvery very preterm birth child (gestational age
Source: Molecular Autism - Category: Molecular Biology Source Type: research
Neuropediatrics DOI: 10.1055/s-0039-1685525Autism spectrum disorder (ASD) is common in adolescents with cerebral palsy (CP) and there is a lack of studies applying artificial intelligence to investigate this field and this population in particular. The aim of this study is to develop and test a predictive learning model to identify factors associated with ASD in adolescents with CP. This was a multicenter controlled cohort study of 102 adolescents with CP (61 males, 41 females; mean age ± SD [standard deviation] = 16.6 ± 1.2 years; range: 12–18 years). Data on e...
Source: Neuropediatrics - Category: Neurology Authors: Tags: Original Article Source Type: research
BRONX, NY—(February 28, 2019)—Children with intellectual and developmental disabilities (IDD) have long benefited from the training pediatricians receive to treat autism, epilepsy, cerebral palsy, or other disorders. Their doctors often connect these young patients with many professionals—from physical, occupational, and speech therapists to psychologists, social workers, and special-care dentists. But as children grow up, they soon discover there are far fewer physicians aware of their unique needs.
Source: Einstein News - Category: Universities & Medical Training Source Type: news
ConclusionsInitial evaluation suggests that QI-Disability is a reliable and valid measure of quality of life across the spectrum of intellectual disability. It has the potential to allow clearer identification of support needs and measure responsiveness to interventions.
Source: Quality of Life Research - Category: Health Management Source Type: research
Abstract The purpose of this study was to survey parental satisfaction with ambulatory anesthesia during dental treatment in disabled patients. Factors associated with parental preference for general anesthesia during future dental treatment in such patients were also investigated. A questionnaire was mailed to the parents of 181 disabled individuals who underwent dental treatment under ambulatory anesthesia at Tokyo Dental College Suidobashi Hospital between 2012 and 2016. A total of 71 responses were received (39.2%). The mean patient age was 18 years, and disabilities included autism spectrum disorder, intellec...
Source: The Bulletin of Tokyo Dental College - Category: Dentistry Authors: Tags: Bull Tokyo Dent Coll Source Type: research
Abstract A small heterozygous deletion involving KANK1 was originally reported in 2005 to cause cerebral palsy in one large Israeli family of Jewish Moroccan origin. There were nine affected children over two generations to five unaffected fathers. All of these children had congenital hypotonia that evolved into spastic quadriplegia over the first year of life, along with intellectual impairment and brain atrophy. The subsequent clinical depictions of other individuals with neurological disease harbouring a comparable KANK1 deletion have been extremely variable and most often quite dissimilar to the original famil...
Source: European Journal of Medical Genetics - Category: Genetics & Stem Cells Authors: Tags: Eur J Med Genet Source Type: research
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