IJERPH, Vol. 15, Pages 319: Patient-Centered Care in Breast Cancer Genetic Clinics
IJERPH, Vol. 15, Pages 319: Patient-Centered Care in Breast Cancer Genetic Clinics
International Journal of Environmental Research and Public Health doi: 10.3390/ijerph15020319
Authors:
Anne Brédart
Amélie Anota
Julia Dick
Violetta Kuboth
Olivier Lareyre
Antoine De Pauw
Alejandra Cano
Dominique Stoppa-Lyonnet
Rita Schmutzler
Sylvie Dolbeault
Jean-Luc Kop
With advances in breast cancer (BC) gene panel testing, risk counseling has become increasingly complex, potentially leading to unmet psychosocial needs. We assessed psychosocial needs and correlates in women initiating testing for high genetic BC risk in clinics in France and Germany, and compared these results with data from a literature review. Among the 442 counselees consecutively approached, 212 (83%) in France and 180 (97%) in Germany, mostly BC patients (81% and 92%, respectively), returned the ‘Psychosocial Assessment in Hereditary Cancer’ questionnaire. Based on the Breast and Ovarian Analysis of Disease Incidence and Carrier Estimation Algorithm (BOADICEA) BC risk estimation model, the mean BC lifetime risk estimates were 19% and 18% in France and Germany, respectively. In both countries, the most prevalent needs clustered around the “living with cancer” and “children-related issues” domains. In multivariate analyses, a higher number of psychosocial needs were significantly associated with younger age (b = −0.05), higher anxiety (b = 0.78), and having children (b = 1.51),...
Source: International Journal of Environmental Research and Public Health - Category: Environmental Health Authors: Anne Br édart Am élie Anota Julia Dick Violetta Kuboth Olivier Lareyre Antoine De Pauw Alejandra Cano Dominique Stoppa-Lyonnet Rita Schmutzler Sylvie Dolbeault Jean-Luc Kop Tags: Article Source Type: research
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