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Why communication from a ‘locked-in’ child is a miracle we must question

If Jonathan Bryan can communicate we should celebrate, but hard evidence is needed before we change how severely disabled children are cared forThere has been much coverage lately – including inthe Times,the Mirror,the Daily Mail, andtonight ’s CBBC documentary special– of the story of 11-year-old Jonathan Bryan and his remarkable ability to write poetry, keep a regular blog, and communicate with his parents, in spite of his severe and debilitating cerebral palsy. Now Jonathan – who communicates via a spelling board with the help of a facilitator who carefull y watches the movement of his eyes – iscampaigning for other severely disabled children to be taken out of special educational needs classes and taught in regular classes, just as he is.Jonathan has been disabled since birth, when doctors warned that he had suffered such severe brain damage (asJonathan ’s Guardian article last year explained, “the MRI scan of my brain was one of the worst the technician had seen”) that hemay never be able to run, walk or even recognise his parents. With such a bleak prognosis, the progress Jonathan appears to have made is truly remarkable – “nothing short of a miracle”, as his parents describe it.Continue reading...
Source: Guardian Unlimited Science - Category: Science Authors: Tags: Science and scepticism Source Type: news

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We reported a surge in the use of augmented reality in healthcare at the end of 2016, with the trend continuing in 2017. Notably, Microsoft’s HoloLens was successfully used for spinal surgery applications by a surgical navigation company named ...
Source: Medgadget - Category: Medical Devices Authors: Tags: Exclusive Source Type: blogs
t E Abstract PURPOSE: To examine test-retest reliability and construct validity of the Scandinavian version of the caregiver priorities and child health index of life with disabilities (CPCHILD) questionnaire for children with cerebral palsy (CP). METHODS: Families were recruited in Sweden and Norway and stratified according to the gross motor function classification system levels I-V for children born 2000-2011, mean age 7.9 (SD 3.2). Construct validity based on the first questionnaire (n = 106) was evaluated for known groups, using linear regression analysis. Intraclass correlation coefficient...
Source: Disability and Rehabilitation - Category: Rehabilitation Authors: Tags: Disabil Rehabil Source Type: research
This work studies the feasibility of using mental attention to access a computer. Brain activity was measured with an electrode placed at the Fp1 position and the reference on the left ear; seven normally developed people and three subjects with cerebral palsy (CP) took part in the experimentation. They were asked to keep their attention high and low for as long as possible during several trials. We recorded attention levels and power bands conveyed by the sensor, but only the first was used for feedback purposes. All of the information was statistically analyzed to find the most significant parameters and a classifier bas...
Source: Sensors - Category: Biotechnology Authors: Tags: Article Source Type: research
With the proposed changes to the Affordable Care Act (ACA), 20 million Americans are at risk of losing their health care coverage. A survey, conducted by Brunswick Partners, found that “75 percent of Americans agree that the proposed changes to Medicaid in the AHCA are a bad idea. And that we should not allow 14 million Americans to become uninsured even if there is a potential to reduce Medicaid spending. These results are significant because they find majorities of Americans identifying as conservatives (55 percent), moderates (82 percent) and liberals (90 percent) are opposed to the AHCA’s Medicaid pro...
Source: Healthy Living - The Huffington Post - Category: Consumer Health News Source Type: news
The question is not whether disruptive technologies will transform the healthcare job market, but rather how and when will it happen. Healthcare navigators, augmented/virtual reality operation planners and nanomedicine engineers in the second part of my article series about future jobs in healthcare. As I am certain that the huge waves of technological change transform the medical professional palette; based on the current and prospective trends in digital health technologies I envisioned what potential new professions could appear in our lives. Don’t miss the first part of the list! If you have an idea about another...
Source: The Medical Futurist - Category: Information Technology Authors: Tags: Future of Medicine artificial intelligence augmented reality brain-computer interface cyborg gamification gc4 Health Innovation nanotechnology Personalized medicine psychology robotics virtual reality Source Type: blogs
Conclusion Managing pain in young people with severe musculoskeletal and cognitive impairment presents a huge challenge to carers and professionals. The PPP may represent a useful adjunct in those young people with severe communication difficulties.
Source: Research in Developmental Disabilities - Category: Disability Source Type: research
ConclusionsPlanned VBB confers no additional risks for child health, development, or educational achievement compared to planned cesarean section.This article is protected by copyright. All rights reserved.
Source: Acta Obstetricia et Gynecologica Scandinavica - Category: OBGYN Authors: Tags: Original Research Article Source Type: research
Editor’s note: “Narrative Matters: On Our Reading List” is a monthly roundup where we share some of the most compelling health care narratives driving the news and conversation in recent weeks. Stunting The Growth Of Children With Disabilities Parents of children with severe disabilities concerned about being able to physically care for their children as they grow up are finding hope in a treatment known as “growth-attenuation therapy,” but questions about the ethics of the therapy, and a lack of long-term outcomes data, mire the treatment in controversy. In The New York Times Magazine, G...
Source: Health Affairs Blog - Category: Health Management Authors: Tags: Elsewhere@ Health Affairs Featured Narrative Matters autism heart disease On Our Reading List Source Type: blogs
CONCLUSIONS: The 24 elements established characterize the key concepts that families and community stakeholders value when developing physical activity programs for youth with CP. When incorporated into clinical practice, each of the elements may be used to evaluate key aspects of outcome for individuals with CP. PMID: 26865106 [PubMed - as supplied by publisher]
Source: Physical Therapy - Category: Physiotherapy Authors: Tags: Phys Occup Ther Pediatr Source Type: research
Single-switch access in conjunction with scanning remains a fundamental solution in restoring communication for many children with profound physical disabilities. However, untimely switch inaction and unintentional switch activations can lead to user frustration and impede functional communication. A previous preliminary study, in the context of a case series with three single-switch users, reported that correct, accidental and missed switch activations could elicit cardiac deceleration and increased phasic skin conductance on average, while deliberate switch non-use was associated with autonomic nonresponse. The present s...
Source: IEE Transactions on Neural Systems and Rehabilitation Engineering - Category: Neuroscience Source Type: research
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