“I didn't want to be in charge and yet I was”: Bereaved caregivers' accounts of providing home care for family members with advanced cancer

ConclusionsCaregivers were often thrust into assuming control in order to compensate for deficiencies in formal palliative home care services. Policies, quality indicators and guidelines are needed to ensure the provision of comprehensive, interdisciplinary home palliative care.
Source: Psycho-Oncology - Category: Cancer & Oncology Authors: Tags: PAPER Source Type: research

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Peripherally inserted central catheter, midline, and "short" midline in palliative care: Patient-reported outcome measures to assess impact on quality of care. J Vasc Access. 2018 Dec 03;:1129729818814732 Authors: Magnani C, Calvieri A, Giannarelli D, Espino M, Casale G Abstract OBJECTIVES:: A prospective, observational study was conducted in our palliative care unit to assess the impact of peripherally inserted central catheters (PICCs), midline, and "short" midline catheters on the quality of care in cancer and non-cancer patients. The secondary objective was to assess pain and di...
Source: The Journal of Vascular Access - Category: Surgery Tags: J Vasc Access Source Type: research
This study is a cross-sectional retrospective analysis of all emergent palliative radiotherapy courses at a single academic tertiary institution across one year.Results214 patients received a total of 238 treatment courses. The most common indications were bone (39%) and brain (14%) metastases. Compared to outpatients, inpatients had lower mean survival (2 months vs 6 months, p
Source: Practical Radiation Oncology - Category: Cancer & Oncology Source Type: research
Trabectedin is used routinely in the palliative management of patients with advanced soft tissue sarcoma. It is not generally considered to be cardiotoxic, and there is no specific caution for its use in patients with a history of cardiac disease or risk factors. Here, we report six cases from a single academic centre where life-threatening cardiotoxicity occurred acutely during treatment with trabectedin. These patients had a median age of 72.5 years (range: 68–81) at presentation with cardiotoxicity, significantly higher than the median ages of patients treated with trabectedin in clinical trials. Cardiotoxicity oc...
Source: Anti-Cancer Drugs - Category: Cancer & Oncology Tags: CASE REPORTS Source Type: research
Source: Clinical Nutrition - Category: Nutrition Authors: Tags: Letter to the Editor Source Type: research
AbstractPalliative care (PC) aims to improve quality of life for patients and their families. The World Health Organization and American Academy of Pediatrics recommend that PC starts at diagnosis for children with cancer. This systematic review describes studies that reported PC timing in the pediatric oncology population. The following databases were searched: PubMed, Web of Science, CINAHL, and PsycInfo databases. Studies that reported time of PC initiation were independently screened and reviewed by 2 researchers. Studies describing pilot initiatives, published prior to 1998, not written in English, or providing no emp...
Source: Cancer Medicine - Category: Cancer & Oncology Authors: Tags: REVIEW Source Type: research
Conditions:   Cancer;   Cardiac Disease;   Pulmonary Disease;   Neuro-Degenerative Disease;   Renal Disease;   Stroke;   Sepsis;   Hepatic Disease Interventions:   Other: Active Intervention;   Other: Usual Care Sponsor:   University of Alabama at Birmingham Not yet recruiting
Source: ClinicalTrials.gov - Category: Research Source Type: clinical trials
Abstract OBJECTIVE: Although palliative care is critical to managing symptoms, pain, and transitions to end-of-life care among those facing serious or chronic illness, it is often underused, which may be due to stigma associated with palliative care representing giving up fighting one's illness. The goal of the present studies was to test the theoretical framework of stigma within the context of palliative care to inform future work on intervention development that addresses potential barriers to palliative care utilization. METHOD: In study 1, participants (n = 152) had an oncologist describe two treatment o...
Source: Palliative and Supportive Care - Category: Palliative Care Authors: Tags: Palliat Support Care Source Type: research
In this study, we assessed the impact of oncology knowledge on QOL and the relationship between QOL and various environmental factors and unconventional treatment methods in patients with CRC treated with chemotherapy and targeted therapy. The results of first-line palliative chemotherapy in 330 patients with colorectal cancer treated between January 2010 and December 2016 in two centers were analyzed. The average age of patients was 66  ± 11.7 years. Median survival time was 25 months. In multivariate analysis, the performance status and response to treatment had a significant effect on surv...
Source: Journal of Cancer Education - Category: Cancer & Oncology Source Type: research
Symptom burden plagues patients with progressive fibrotic interstitial lung disease (PF-ILD) [1]; this symptom burden, in combination with poor prognosis and uncertainty of disease course heavily impacts quality of life, both for patients and family members [2, 3]. Patients with PF-ILD are confronted with a wide range of diagnoses and prognoses; some may live many years with a disease that is responsive to treatment, while others with PF-ILD often have a disease trajectory similar to and/or worse than that of lung cancer [4, 5].
Source: European Respiratory Journal - Category: Respiratory Medicine Authors: Tags: Editorials Source Type: research
CONCLUSION:: Although our newly developed interview model was well perceived by patients, we were not able to demonstrate a significant difference in quality of life and spiritual well-being between groups. Future interventions by spiritual counselors aimed at improving quality of life, and spiritual well-being should focus on the provision of sources of meaning and peace. PMID: 30516096 [PubMed - as supplied by publisher]
Source: Palliative Medicine - Category: Palliative Care Authors: Tags: Palliat Med Source Type: research
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