The joy of cooking (and eating) after tracheomalacia

For most little kids, a trip to the supermarket is an annoying chore, made tolerable only by the opportunity to request sugary snacks as a reward. But when Charlotte McQueen accompanies her mother, Erin, to the store, it’s a journey marked by imagination and delight. “Mom, can we get that?” she asks, pointing to a can of pureed pumpkin. “Oh, and we’ll need marshmallows and we can make chocolate frosting. It will be a great cake!” At nearly 5 years old, Charlotte is an avid baker — a talent she picked up not at culinary school, but at the Yawkey Family Inn. There, a volunteer taught her and other chronically ill kids how to bake while they waited to undergo treatment at Boston Children’s Hospital. Today, it’s not only impressive that she can bake a cake, but also that she can eat it. For the first several years of her life, Charlotte couldn’t eat by mouth. In fact, she couldn’t even breathe on her own. A scary turn of events “We wanted a home birth,” remembers Erin. “It went smoothly, but then things started going downhill fast.” Charlotte stopped breathing and had to be rushed to a hospital near their home in Las Vegas, Nevada. Once there, she continued to have episodes of apnea and was transported to another local hospital for care. When a clinician there tried to insert a nasogastric (NG) tube, which typically runs through the nose and down the throat into the stomach, Erin and her hus...
Source: Thrive, Children's Hospital Boston - Category: Pediatrics Authors: Tags: Diseases & Conditions Our Patients’ Stories Dori Gallagher Dr. Michael Manfredi Dr. Russell Jennings Esophageal and Airway Treatment Center esophageal atresia and tracheoesophageal fistula posterior tracheopexy tracheomalacia Yawkey Fa Source Type: news

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