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The joy of cooking (and eating) after tracheomalacia

For most little kids, a trip to the supermarket is an annoying chore, made tolerable only by the opportunity to request sugary snacks as a reward. But when Charlotte McQueen accompanies her mother, Erin, to the store, it’s a journey marked by imagination and delight. “Mom, can we get that?” she asks, pointing to a can of pureed pumpkin. “Oh, and we’ll need marshmallows and we can make chocolate frosting. It will be a great cake!” At nearly 5 years old, Charlotte is an avid baker — a talent she picked up not at culinary school, but at the Yawkey Family Inn. There, a volunteer taught her and other chronically ill kids how to bake while they waited to undergo treatment at Boston Children’s Hospital. Today, it’s not only impressive that she can bake a cake, but also that she can eat it. For the first several years of her life, Charlotte couldn’t eat by mouth. In fact, she couldn’t even breathe on her own. A scary turn of events “We wanted a home birth,” remembers Erin. “It went smoothly, but then things started going downhill fast.” Charlotte stopped breathing and had to be rushed to a hospital near their home in Las Vegas, Nevada. Once there, she continued to have episodes of apnea and was transported to another local hospital for care. When a clinician there tried to insert a nasogastric (NG) tube, which typically runs through the nose and down the throat into the stomach, Erin and her hus...
Source: Thrive, Children's Hospital Boston - Category: Pediatrics Authors: Tags: Diseases & Conditions Our Patients’ Stories Dori Gallagher Dr. Michael Manfredi Dr. Russell Jennings Esophageal and Airway Treatment Center esophageal atresia and tracheoesophageal fistula posterior tracheopexy tracheomalacia Yawkey Fa Source Type: news

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Source: TIME: Health - Category: Consumer Health News Authors: Tags: Uncategorized Can a dog get the flu Can dogs get the flu Can you give your dog the flu Dog flu 2018 Dog flu symptoms Dog flu symptoms and treatment dog flu vaccine healthytime public health Signs of dog flu Symptoms of dog flu the Source Type: news
Conclusions:Children with ESLD and malnutrition who have failed enteral feeding may benefit from PN to improve and/or resolve malnutrition before liver transplant. Objective: Malnutrition is a common complication of end-stage liver disease (ESLD) associated with poor liver transplant outcomes. Nasogastric feeds are used for nutritional supplementation, but some patients remain malnourished. Parenteral nutrition (PN) can be effective, but has potential complications. The primary objective was to evaluate the effect of PN on anthropometric measures in children with ESLD awaiting liver transplant. Secondary objectives wer...
Source: Journal of Pediatric Gastroenterology and Nutrition - Category: Gastroenterology Tags: Original Articles: Hepatology Source Type: research
To determine incidence and outcome of biliary atresia (BA) between ethnic groups in New Zealand (NZ), a retrospective review was undertaken of children with BA born between 2002 and 2014. Prioritized ethnicity was used to determine ethnicity and was compared to population data. Uni- and multivariate analyses were undertaken to determine demographic and biochemical factors associated with outcome. Overall incidence was 1 in 9181 (Māori 1 in 5285; European 1 in 16,228; P 
Source: Journal of Pediatric Gastroenterology and Nutrition - Category: Gastroenterology Tags: Short Communication: Hepatology Source Type: research
Conclusions:In this retrospective pilot study, PMSA was significantly lower in children with ESLD compared with healthy age- and gender-matched controls. Because this finding was independent of growth in ESLD subjects, PMSA may represent a novel objective nutritional biomarker in children with advanced liver disease. Background: Sarcopenia, reflected by decreased psoas muscle surface area (PMSA), has been identified as a novel and independent predictor of wait-list mortality and outcomes in adult liver transplantation (LT). We hypothesized that children with end-stage liver disease (ESLD) would have smaller PMSA than h...
Source: Journal of Pediatric Gastroenterology and Nutrition - Category: Gastroenterology Tags: Original Articles: Hepatology Source Type: research
Conclusions:Children with EA are exposed to significant amounts of radiation and an increased estimated cumulative cancer mortality risk. Efforts should be made to eliminate superfluous imaging. Objectives: Cases of esophageal carcinoma have been documented in survivors of esophageal atresia (EA). Children with EA undergo considerable amounts of diagnostic imaging and consequent radiation exposure potentially increasing their lifetime cancer mortality risk. This study evaluates the radiological procedures performed on patients with EA and estimates their cumulative radiation exposure and attributable lifetime cancer mo...
Source: Journal of Pediatric Gastroenterology and Nutrition - Category: Gastroenterology Tags: Original Articles: Gastroenterology Source Type: research
Conclusions:POEM is a mini-invasive technique and a promising new treatment for pediatric patients, making it worthy of further clinical research and application. Background: Achalasia is a disease caused by neuromuscular dysfunction in the esophagogastric junction, with a relatively low incidence among children. Peroral endoscopic myotomy (POEM) is a new endoscopic procedure for the treatment of achalasia; however, it is rarely applied in children. Objectives: We aim to study the feasibility, safety, and effectiveness of POEM as a treatment for pediatric achalasia. Methods: A total of 21 pediatric patients (ages...
Source: Journal of Pediatric Gastroenterology and Nutrition - Category: Gastroenterology Tags: Original Articles: Gastroenterology Source Type: research
"Poor oral health can lead to pneumonia and cardiovascular disease as well as periodontal disease," saidRita A. Jablonski, even though these illnesses are not usually associated with the mouth. Persons with dementia resist care when they feel threatened. In general, these patients cannot care for themselves and need help.byAlzheimer's Reading Room"To my knowledge, we are the only nurses in the country who are looking at ways to improve the mouth care of persons with dementia, especially those who fight and bite during mouth care," said Jablonski. "Our approach is unique because we frame resistive b...
Source: Alzheimer's Reading Room, The - Category: Neurology Authors: Tags: alzheimer's brush teeth Alzheimer's Dementia alzheimers care alzheimers dementia symptoms alzheinmer's symptoms brushing teeth dementia brushing Dental Hygiene and Dementia Source Type: blogs
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Source: Pediatric Pulmonology - Category: Respiratory Medicine Authors: Tags: ORIGINAL ARTICLE: RESPIRATORY INFECTIONS Source Type: research
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Source: Daily Express - Health - Category: Consumer Health News Source Type: news
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Source: Specified Life - Category: Information Technology Tags: index jules berman jules j berman precision medicine Source Type: blogs
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