A Parent’s View: The Importance of Children’s Hospitals

This story is written by Kerri Vatour and was originally published on the Children’s Hospital Association’s blog. The first time Boston Children’s Hospital saved my son’s life, he was 21 hours old. It wasn’t a surprise—Joey had been diagnosed in utero with both a ventricular septal defect (VSD), a hole between the right and left sides of his heart, and a duodenal stenosis, where a portion of the intestine is so constricted that very little can pass through, by doctors in the Advanced Fetal Care Center. Upon birth, it was obvious that the latter issue would take precedence, and Dr. Smithers worked his magic in almost six hours. The second time came less than a month later, when his VSD and another heart defect—an atrial septal defect (ASD), or a hole in the upper part of his heart—were repaired by the amazing Frank Pigula, MD. At that point, we had been inundated with some answers and more questions about our beloved boy. Dr. Smithers uncovered a collection of other maladies during his original surgery—things that were fixed (an omphalocele, where a portion of his liver was coming through his umbilical cord; nodules coming off his organs) and others that weren’t (cleft palate, small cysts in his liver). Eventually, while he recovered from that procedure in the NICU, he was diagnosed with trisomy 14 mosaic, a genetic condition caused by an extra chromosome No. 14. It’s incredibly rare, with very few recorded case...
Source: Thrive, Children's Hospital Boston - Category: Pediatrics Authors: Tags: All posts Source Type: news

Related Links:

Authors: Valentín-Bravo FJ, Asensio-Sánchez VM, Guerra-González A, Vallelado-Álvarez AI Abstract "Ankyloblepharon filiforme adnatum" is a congenital anomaly characterized by partial or complete adhesion of upper and lower eyelids. The lid margins remain fused until the end of the fifth month of gestational age. Complete separation usually is completed about the seventh fetal month. Ankyloblepharon may be an isolated manifestation or may be associated with abnormalities in other organs and / or systems. The case is presented on a newborn male with family history of hypohydrotic ...
Source: Archivos de la Sociedad Espanola de Oftalmologia - Category: Opthalmology Tags: Arch Soc Esp Oftalmol Source Type: research
AbstractObjectivesIn type II atrial septal defect (ASD) patients, the left-to-right (LR) shunt causes adaptation of the heart and circulation. The study objective was to evaluate with cardiovascular magnetic resonance imaging (CMR) the impact of LR shunt on left (LV) and right ventricular (RV) volumes, function, and myocardial strain.MethodsThirty-five patients (42  ± 17 years, 17 male) were compared to a control group (n = 40). Cine imaging was used to calculate ventricular volumes and ejection fraction (EF), global longitudinal (GLS) and circumferential strain (GCS), and longitudin...
Source: European Radiology - Category: Radiology Source Type: research
Conclusions The vomer bone graft has been shown to correct the lateral and inferior disorientation of the alar base and improve the nostril and nasal tip aesthetic measurements. The vomer bone is therefore a sufficient bone source for grafting with high viability and no resorption.
Source: Annals of Plastic Surgery - Category: Cosmetic Surgery Tags: Head and Neck Surgery Source Type: research
Conclusions Although plastic surgery trainees endorse gradual operative autonomy overall, a majority of final-year trainees do not perceive supervision only independence in the majority of core procedures queried. Faculties perceive higher trainee operative autonomy than trainees for most procedures. Discordant approaches to case logging were identified both among trainees and between trainees and faculties. Standardization may improve both progression and assessment of operative autonomy in plastic surgery training.
Source: Annals of Plastic Surgery - Category: Cosmetic Surgery Tags: Research Source Type: research
Conclusions The studies here suggest that certain pediatric patient populations are at risk for impaired psychosocial functioning as a result of repetitive procedures. However, it is important to differentiate whether the association with poorer psychosocial outcomes is from the number of surgical procedures or whether the number if just a surrogate for increased disease complexity. Standardized psychosocial outcomes measures and future prospective, long-term, randomized clinical trials are also warranted.
Source: Annals of Plastic Surgery - Category: Cosmetic Surgery Tags: Review Papers Source Type: research
Source: The Journal of Thoracic and Cardiovascular Surgery - Category: Cardiovascular & Thoracic Surgery Authors: Source Type: research
Source: The International Journal of Cardiovascular Imaging - Category: Radiology Source Type: research
Authors: Kim S, Cho YH, Park PW, Lee YT, Jun TG, Kim WS, Sung K, Yang JH, Chung S Abstract A 59-year-old man presented for possible durable ventricular assist device (VAD) implantation. He had previously been diagnosed with congenitally corrected transposition of the great arteries, a ventricular septal defect, an atrial septal defect, pulmonary valve stenosis, and aortic valve regurgitation. In the previous 22 years, he had undergone palliative cardiac surgery 3 times. VAD implantation as a bridge to transplantation was planned. Owing to severe adhesions, mesocardia, a left ascending aorta, and moderate aortic reg...
Source: Korean Journal of Thoracic and Cardiovascular Surgery - Category: Cardiovascular & Thoracic Surgery Tags: Korean J Thorac Cardiovasc Surg Source Type: research
Abstract OBJECTIVE: Mandibular distraction osteogenesis (MDO) aims to relieve tongue-based airway obstruction in Robin Sequence (RS). We investigated direct laryngoscopy grade (DLG) improvement and difficult airway (DA) resolution following MDO. DESIGN: Retrospective cohort analysis. SETTING: Three tertiary care institutions. PATIENTS: Sixty-four infants with RS who underwent a single MDO procedure in their first year of life were identified from January 2010 to January 2019. MAIN OUTCOME MEASURES: The primary outcome was DLG pre- and post-MDO. Secondary outcomes included DA designation, pre- a...
Source: The Cleft Palate-Craniofacial Journal - Category: ENT & OMF Authors: Tags: Cleft Palate Craniofac J Source Type: research
CONCLUSIONS: Interrater reliability needs to be improved so that the assessment procedure produces more consistent findings among clinicians, thus strengthening our evidence base for this procedure. Interrater additional research is needed to understand how the stimulus affects ratings of VP physiology, to identify stimuli that yield the most useful clinical information, and to understand how training affects the ratings of VP physiology. PMID: 33030039 [PubMed - as supplied by publisher]
Source: The Cleft Palate-Craniofacial Journal - Category: ENT & OMF Authors: Tags: Cleft Palate Craniofac J Source Type: research
More News: Abdominal Wall Repair | Atrial Septal Defect | Blogging | Cardiology | Child Development | Children | Cleft Palate | Correction of Pyloric and Duodenal Stenosis | Duodenal Stenosis | Emergency Medicine | Gastroenterology | Genetics | Health | Heart | Hole in the Heart | Hospitals | Liver | Nurses | Nursing | Nutrition | Omphalocele | Pediatrics | Urology & Nephrology | Ventricular Septal Defect