New year. New lungs.

I’ve had asthma and chronic lung disease since I was very young. I had to use everything — from my head to my toes — to help me breathe. I remember being able to hear myself wheezing, to feel my lungs rattling. I had marks all over my face from my oxygen mask. I thought I would never be clear of mucus and never be able to walk without being out of breath. All I ever wanted was to breathe. I spent so much energy trying to breathe that I didn’t have much left for eating, so I was really skinny. I spent a lot of time in a wheelchair. When I was able to walk, it would be for short distances and my shoulders would slouch downward. People would stare and point at me. I wanted to tell them, “It’s not my fault! I’m sick.” It was so frustrating. It was helpful to keep a journal with quotes that inspire me, like, “The tongue has no bones, but it’s strong enough to break a heart.” Once you say something, you can’t take it back, so if you see someone with a disability, be nice or just don’t say anything. My friends at school were also nice and supportive. They would ask questions and I would try to explain. If they didn’t understand, I’d give them a list of words — COPD, hypoxia, bronchiectasis — to look up. I’ve always loved school, probably because I know what it’s like to be too sick to go. Whenever I had to miss school, I’d do worksheets at home and email them to m...
Source: Thrive, Children's Hospital Boston - Category: Pediatrics Authors: Tags: Diseases & Conditions Our Patients’ Stories chronic lung disease double lung transplant Francis Fynn-Thompson Gary Visner Lung Transplant Program Pediatric Transplant Center (PTC) Source Type: news

Related Links:

This article provides an update for its use in children.Pediatric Pharmacotherapy
Source: Medscape Allergy Headlines - Category: Allergy & Immunology Tags: Pediatrics Journal Article Source Type: news
In this study, a novel hybrid scaffold made of transition metal was prepared on the base of graphene. After characterization of the synthetic Mo0.25Co1.257W0.25S3 hybridized with graphene oxide (MCWS/GO) using XRD, EDX, and FESEM, the cytotoxicity and the cell apoptosis of the composite were assumed using MTT and Annexin V/PI flow-cytometry methods, respectively. To treat spinal cord and sciatic nerve injuries, ethidium bromide induced damages was used in rats by T-10 to T-12 laminectomy and sciatic nerve stimulation. The spinal subarachnoid space was perfused with normal saline in control groups in comparison with using M...
Source: Journal of Molecular Structure - Category: Molecular Biology Source Type: research
This study, being presented tomorrow (Monday) morning at the annual meeting of the American College of Cardiology in New Orleans, reports that " adults who report puffing e-cigarettes, or vaping, are significantly more likely to have a heart attack, coronary artery disease and depression compared with those who don ’t use them or any tobacco products. "These conclusions were based on a cross-sectional analysis of data from the 2014, 2016, and 2017 National Health Interview Surveys. Respondents were asked to report whether they had ever been diagnosed with having had a heart attack, coronary artery disease, ...
Source: The Rest of the Story: Tobacco News Analysis and Commentary - Category: Addiction Source Type: blogs
AbstractDiabetic retinopathy is one of the most major causes of blindness and disability in diabetic patients and imposes very high cost on Health Care System. Studies conducted in the country showed different and inconsistent prevalence of the disease. The study aims to determine the overall prevalence of retinopathy in patients with type 2 diabetes in Iran through a systematic review and meta-analysis. The present study was conducted via meta-analysis method during March, 2000 to October, 2018. The articles related to the subject under study were obtained from Magiran, SID, Medline (PubMed), Science Direct, Scopus and Go...
Source: Reviews in Endocrine and Metabolic Disorders - Category: Endocrinology Source Type: research
This article examines several of the classes of medications that are used for migraine preventive treatment, specifically, angiotensin-converting enzyme inhibitors, angiotensin receptor blockers, calcium channel blockers, serotonin antagonists, alpha-adrenergic agonists, and N-methyl-d-aspartic acid receptor antagonists.Recent findingsThere have been randomized control trials investigating medications in these drug classes since the most recent guidelines for migraine prevention in adults were published by the American Academy of Neurology, American Headache Society, and the Canadian Headache Society. In these investigatio...
Source: Current Treatment Options in Neurology - Category: Neurology Source Type: research
AbstractPurpose of the ReviewTargeted pharmacotherapies did improve survival rates, exercise capacity, and quality of life (QoL) of PAH patients. However, these pharmacological interventions are expensive and not always accessible. In addition, not all patients do respond similarly to these medications and many will continue to deteriorate. This review aims to discuss the beneficial role of an artificial right-to-left shunt and highlights current interventional devices and outcomes.Recent FindingsSince patients with preexisting atrial shunts or patients with Eisenmenger ’s disease show better survival rates, improved...
Source: Current Cardiology Reports - Category: Cardiology Source Type: research
Authors: Paraskevas GP Abstract Hereditary types of ischemic cerebral subcortical small vessel disease (SSVD) are rare, usually autosomal dominant, diseases, due to an abnormality in vessel wall synthesis. They may present with various combinations of migraine with aura, ischemic events (transient ischemic attacks, lacunar strokes) and progressively worsening ischemic lesion load in brain imaging. Eventually, vascular cognitive impairment (usually of the frontal-subcortical type) develops, frequently accompanied by behavioral-psychiatric symptoms and bilateral pyramidal and pseudobulbar signs leading to severe disa...
Source: Hellenic Journal of Nuclear Medicine - Category: Nuclear Medicine Tags: Hell J Nucl Med Source Type: research
We present the results from the two-phases of our prospective study on cognitive decline in MS patients using the data collected from the A' Neurologic clinic at AHEPA hospital, Thessaloniki, Greece. Most of the patients of the present study revealed mild cognitive impairment with mild influence on the everyday function. We found weak correlation between cognitive deficit and the duration of MS, as well as the physical disability status and moderate correlation between cognitive impairment and the type of the disease as well as MRI findings (atrophy and lesion load). Our results also indicate that the currently available b...
Source: Hellenic Journal of Nuclear Medicine - Category: Nuclear Medicine Tags: Hell J Nucl Med Source Type: research
Conclusion and implicationsThe findings indicate that teachers from mainstream schools potentially hold less helpful beliefs in response to RRBs and therefore are a professional group who may benefit the most from additional support and training. Further research could consider conducting a qualitative exploration of why teachers hold certain beliefs about RRBs and/or sampling those who are less experienced in working with children with ASD.
Source: Research in Developmental Disabilities - Category: Disability Source Type: research
This study provides a possible reason why genes carrying health risks have persisted in human populations. The second found evidence for multiple variants in genes related to ageing that exhibited antagonistic pleiotropic effects. They found higher risk allele frequencies with large effect sizes for late-onset diseases (relative to early-onset diseases) and an excess of variants with antagonistic effects expressed through early and late life diseases. There also exists other recent tangible evidence of antagonistic pleiotropy in specific human genes. The SPATA31 gene has been found under strong positive genomic sele...
Source: Fight Aging! - Category: Research Authors: Tags: Newsletters Source Type: blogs
More News: Asthma | Blogging | Cardiology | Children | Chronic Obstructive Pulmonary | Disability | Heart | Heart Transplant | Hospitals | Insect Bites & Stings | Learning | Lung Transplant | National Institute for Health and Clinical Excelle | Nurses | Nursing | Pediatrics | Physical Therapy | Students | Teachers | Transplant Surgery | Transplants | Universities & Medical Training