Optimized care in Patients with Rare Diseases: TSC at the Center for Rare Diseases (ZSEUKS) at Saarland University Medical Center, Germany

Klin Padiatr 2017; 229: 311-315 DOI: 10.1055/s-0043-120069Providing comprehensive medical care for patients with rare diseases is both challenging and rewarding. We will give a short summary of the most relevant medical issues pertinent to this subject, and will illustrate some of these issues by sharing our experience in the care of patients with TSC disease. [...] © Georg Thieme Verlag KG Stuttgart · New YorkArticle in Thieme eJournals: Table of contents  |  Abstract  |  Full text

Source: Klinische Padiatrie - November 13, 2017 Category: Pediatrics Authors: Ebrahimi-Fakhari, Daniel Poryo, Martin Graf, Norbert Zemlin, Michael Flotats-Bastardas, Marina Heine, Gunnar Ragoschke-Schumm, Andreas Meyer, Sascha Tags: Review Source Type: research