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‘An easy decision’: Finding care for short bowel syndrome

Allie DeRienzo loves to dance, sing and play with her big brother, switching from the pink-and-purple cartoon world of Shimmer and Shine to the action-packed fantasy of Star Wars with the blink of an eye. It’s a flexibility that has served her well: In just a few years, she’s endured more ups and downs than most 3-year-olds. Although her pregnancy was normal, it became clear as soon as Allie was born that something wasn’t right. “She was incredibly distended and was transferred almost immediately to a high-level neonatal intensive care unit (NICU) in New York,” remembers her mother, Nanci. Concern and confusion It was a confusing time for everyone. “She was failing to thrive in the NICU, but no one there actually told us she had short bowel syndrome,” says Nanci. This rare but serious condition can occur when a child either loses or is born without enough small intestine, preventing the body from extracting the nutrients it needs to survive. Children with this condition often need to receive nutrients intravenously — but long-term IV feeding, also known as total parenteral nutrition (TPN), can lead to liver injury. When doctors suggested that Allie might need someday a liver transplant, her parents knew it was time to research other options. “I was Googling ridiculous things that no mother should ever have to Google, like ‘do babies with intestinal problems always need liver transplants?’” she says. That...
Source: Thrive, Children's Hospital Boston - Category: Pediatrics Authors: Tags: Diseases & Conditions Our Patients’ Stories Center for Advanced Intestinal Rehabilitation Danielle Stamm Dr. Bram Raphael Dr. Mark Puder G-tube short bowel syndrome (SBS). total parenteral nutrition Source Type: news

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Patients often criticize doctors for being unemotional and distant . Because we are taught to maintain a professional barrier , we may seem to be cold and uncaring, but the reality is that doctors have a heart too - we're human after all !Ironically, sometimes it's this humanness which backfires. Thus, we will often identify with some of our patients - especially when they're of the same age group, or come from a similar background. We sometimes need to break bad news to them , and when they start crying on hearing this, we get emotionally upset as well.  We may then end up saying things to try to console the patient,...
Source: Dr.Malpani's Blog - Category: Reproduction Medicine Source Type: blogs
[Vanguard] Is childbearing a curse or blessing to womanhood? This nagging question kept reechoing as reporters watched surgeons at work in the operating theatre of the Usmanu Danfodiyo Teaching Hospital, Sokoto.
Source: AllAfrica News: Pregnancy and Childbirth - Category: OBGYN Source Type: news
CONCLUSIONS: rEPO inhibited spontaneous and oxytocin-induced rat myometrial contractions at 1 and 10 IU/ml concentrations. It appeared that the effect was dose-dependent. PMID: 29228453 [PubMed - in process]
Source: European Review for Medical and Pharmacological Sciences - Category: Drugs & Pharmacology Tags: Eur Rev Med Pharmacol Sci Source Type: research
Conclusions Differential findings are not enough to demonstrate that there is a significant reduction in the frequency of adverse pregnancy outcomes in pregnant women receiving periodontal therapy. Possible explanations are related to factors such as the type of studies analyzed, indicator of obstetric complication considered, and specific variables included in the analysis. Many systematic reviews did not address publication bias and did identify gaps in knowledge that require further clarification.
Source: Journal of Evidence Based Dental Practice - Category: Dentistry Source Type: research
Conclusions Although most obstetrician/gynecologists administer some vaccines to pregnant women, the focus remains on influenza and Tdap. Financial barriers and infrequent use of evidence-based strategies for increasing vaccination uptake may be hindering delivery of a broader complement of adult vaccines in obstetrician/gynecologist offices.
Source: American Journal of Preventive Medicine - Category: International Medicine & Public Health Source Type: research
Sunil Kumar, Surendra Sharma, Riddhi ThakerIndian Journal of Occupational and Environmental Medicine 2017 21(1):9-17 Preterm birth (PTB) is a significant public health concern and a leading cause of infant mortality and morbidity worldwide and often contributes to various health complications later in life. More than 60% of PTBs occur in Africa and south Asia. This overview discusses the available information on occupational, environmental, and lifestyle factors and their contribution to PTB and proposes new etiological explanations that underlie this devastating pregnancy complication. Several factors such as emotion...
Source: Indian Journal of Occupational and Environmental Medicine - Category: Occupational Health Authors: Source Type: research
Conclusions Individual counselling on physical activity during pregnancy based on the participant’s individual needs was desired. On the contrary, the participants could experience the midwife as having her own agenda, insufficient knowledge and primarily focusing on medical surveillance. There is a need of increased level of knowledge among midwives in antenatal care, regarding lifestyle and lifestyle change during pregnancy. This may enhance promotion of a healthy lifestyle for the pregnant woman during counselling.
Source: Sexual and Reproductive Healthcare - Category: Reproduction Medicine Source Type: research
Conclusion This study highlights obstetricians’ experiences and views of ultrasound and prenatal diagnosis in Norwegian maternity care and the challenges associated with the provision of these services, including counselling dilemmas and perceived differences in expectations between caregivers and expectant parents. There was notable diversity among these obstetricians in relation to their support of, and adherence to Norwegian regulations about the use of ultrasound, which indicates that the care pregnant women receive may vary accordingly.
Source: Sexual and Reproductive Healthcare - Category: Reproduction Medicine Source Type: research
A 25 yrs old married woman c/o abdominal pain and nausea for 1 day. Pregnancy test –ve. CT scan revealed an anomalous and elongated left renal vein draining into the left common iliac vein. Left renal vein is elongated with an aberrant para-aortic virtually vertical course.Case Submitted by Dr. Abduladeem Al-Tamimi, MD, DMRD, FRCR, Consultant RadiologistFamous Radiology Blog http://www.sumerdoc.blogspot.com TeleRad Providers at www.teleradproviders.com Mail us at sales@teleradproviders.com
Source: Sumer's Radiology Site - Category: Radiology Authors: Source Type: blogs
Publication date: Available online 13 December 2017 Source:Molecular Aspects of Medicine Author(s): Delia I. Chiarello, Rocío Salsoso, Fernando Toledo, Alfonso Mate, Carmen M. Vázquez, Luis Sobrevia Intercellular communication is a critical process in biological mechanisms. During pregnancy foetoplacental tissues release a heterogeneous group of extracellular vesicles (EVs) that include exosomes, microvesicles, apoptotic bodies, and syncytial nuclear aggregates. These vesicles contain a complex cargo (proteins, DNA, mRNA transcripts, microRNAs, noncoding RNA, lipids, and other molecules) that actively partic...
Source: Molecular Aspects of Medicine - Category: Molecular Biology Source Type: research
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