The patient ’s experience of primary ciliary dyskinesia: a systematic review

ConclusionHealth-related quality of life decreases with age in patients with PCD. For all age groups, PCD was found to greatly impact physical, emotional, social functioning, and treatment burden. More research is needed on the psychosocial impact of the illness, disease burden and its effect on quality of life.
Source: Quality of Life Research - Category: Health Management Source Type: research