Integrated care of muscular dystrophies in Italy. Part 2. Psychological treatments, social and welfare support, and financial costs.

Integrated care of muscular dystrophies in Italy. Part 2. Psychological treatments, social and welfare support, and financial costs. Acta Myol. 2017 Jun;36(2):41-45 Authors: Lorenza M, Marianna S, Melania P, Alessandra S, Antonella Z, Federica C, Erika B, Gianluca V, Sonia M, Maria S, Maria Elena L, Roberta S, Giulia C, Maria C, Angela B, Maria Chiara M, Alessandra G, Claudio S, Luca B, Guja A, Giulia R, Maria Grazia D, Giuseppe V, Marika P, Adele D, Umberto B, Corrado A, Roberta B, Luisa P Abstract This paper describes the psycho-social treatments received by 502 patients with MDs and their relatives, and the costs for care sustained by the families in the previous six month period. Data were collected by the MD-Care Schedule (MD-CS) and the Family Problems Questionnaire (FPQ). Psycho-educational interventions were provided to 72 patients (14.3%), and social/welfare support to 331 patients (65.9%). Social/welfare support was higher in patients with DMD or LGMD, in those showing more severe disability, and in patients who were in contact with centres located in Northern Italy. Psycho-educational interventions were received by 156 (31%) relatives, and social/welfare support by 55 (10.9%) and mainly provided by Family/Patients Associations (83.6%). Relatives with higher educational levels, who spent more daily hours in the assistance of patients with DMD, and in contact with centres in Central Italy more frequently benefited from psych...
Source: Acta Myologica - Category: Neurology Tags: Acta Myol Source Type: research