[MD-17-0009] The PJ Nicholoff Steroid Protocol for Duchenne and Becker Muscular Dystrophy and Adrenal Suppression

Conclusion This protocol, on how to manage patients with corticosteroid dependence, particularly during periods of stress and how to recognize and prevent an acute adrenal crisis, was named in honor of the late Philip James “PJ” Nicholoff, for his contribution to the global Duchenne community. Despite the tragic loss of PJ’s life, the “PJ Nicholoff Steroid Protocol” is a positive result that will impact the lives of people living with Duchenne and using corticosteroids around the world. We thank PJ and his family for encouraging the development of this resource. A pdf of the PJ Nicholoff Protocol can be downloaded at: http://www.parentprojectmd.org/site/DocServer/PJ_Nicholoff_Steroid_Protocol.pdf?docID=15843Acknowledgements for the development of the PJ Nicholoff Steroid Protocol In honor of the late Philip James “PJ” Nicholoff, for his contribution to the global Duchenne community. Vincent’s Hospital, Indianapolis, IN Philip Zeitler, Children’s Hospital Colorado, Aurora, CO Sasigarn Bowden, Nationwide Children’s Hospital, Columbus, OH Doug Biggar, Holland Bloorview Kids Rehab, Toronto, ON Jerry R. Mendell, Nationwide Children’s Hospital, Columbus, OH Anne M. Connolly, St. Louis Children’s Hospital, St. Louis, MO Supporting Organizations Parent Project Muscular Dystrophy (PPMD) Parent Project Muscular Dystrophy (PPMD, www.parentprojectmd.org) is the largest nonprofit organization in the ...
Source: PLOS Currents Muscular Dystrophy - Category: Neurology Authors: Source Type: research