TrumpCare And My Daughter's Wheelchair

When a child is born ill or with disabilities, there is love, but there is also fear. Fear of what will happen during the endless medical procedures, what kind life the child might live, how life will be different than what was imagined and fear of paying for it all. When my daughter Claire was born almost 11 years ago, her health and future were uncertain. Born with a rare genetic disorder that affects nearly every part of her body, Claire spent time in the neo-natal intensive care unit, had heart surgery when she was 4 months old, and endured test after test after test to figure out the extent of the impact of her extra genetic material would have on her health and development. These tests determined she was missing part of her brain, that she suffered from pulmonary hypertension, that she had hearing loss, that she was likely to suffer seizures, that she would be lucky to one day recognize simple symbols, and on and on. Before Claire was a month old, we started calling her the Million Dollar Baby, since her medical bills were already so high. Yet with a secure job at the federal government and a good insurance plan, I hadn’t yet started to worry about the exorbitant cost of caring for a child with significant needs. That changed quickly. Although I had dutifully gotten on several waitlists for daycare centers when I was pregnant, none were able to take on the task of caring for Claire. In any event, I realized that I would not be able to both work and take Claire to ...
Source: Healthy Living - The Huffington Post - Category: Consumer Health News Source Type: news