Duke ’s short lung transplant list saves CF patient

Treatment TermsCystic fibrosisPulmonary rehabilitationLung transplant CategoriesAdvanced treatments SEO Meta Description Cystic fibrosis patient Aimee Driscoll was given just hours to live. With no donor lungs available near her home in Maine, she was flown to Duke. Author MaryAnn Fletcher Overview Cystic fibrosis patient Aimee Driscoll was given just hours to live. With no donor lungs available near her home in Maine, she was flown to Duke. Hero Imageaimee_driscoll_blog.jpg Preview Image Content Blocks Section Header Image/Videoaimee_driscoll_blog2b.jpg Section Features Images/Media Text Content Header High-volume lung transplant center, shorter wait times ContentDuke ’slung transplant center, the highest-volume center in the Southeast, generally has shorter wait times for donor organs -- an average of about 14 days, compared with a national average of four months. The center also accepts difficult cases.Duke quickly dispatched a life flight team to transport Driscoll from Maine. “The carbon dioxide levels in her blood were more than twice what’s normal,” said Duke pulmonologistJohn Reynolds, MD.  “She was at risk for sudden respiratory failure.” The doctors in Maine had estimated she might have just hours to live. “They had my family say goodbye, in case I didn’t make it,” Driscoll said.To stabilize her for the flight, Duke cardiothoracic surgeonJohn C. Haney, MD, put Driscoll on a life-sustaining t...
Source: dukehealth.org: Duke Health News - Category: Consumer Health News Authors: Source Type: news

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We describe an 8-year-old male with a pathogenicUNC80 mutation, intellectual disability, hypotonia and epilepsy with severe central sleep apnea (213.5 events/h) on polysomnography (PSG). We also describe a 20-month-old female with aKCNJ11 mutation, neonatal diabetes and developmental delay who had severe central sleep apnea (131.1 events/h). Both patients had irregular respiratory patterns during sleep and wakefulness and were placed on empiric bilevel positive airway pressure therapy, which was well tolerated with resolution of abnormal respiratory control and hypercapnia. Patients withUNC80 andKCNJ11 gene mutations may h...
Source: Journal of Clinical Sleep Medicine : JCSM - Category: Sleep Medicine Source Type: research
At age 21, Katie Stubblefield became one of 40 people in the world to receive a face transplant
Source: Health News: CBSNews.com - Category: Consumer Health News Source Type: news
Dartmouth College undergraduate Sam Neff D '21 fights cystic fibrosis (CF) every day by following a strict treatment regimen, by contributing to CF research in Geisel’s Lung Biology Center, and by participating in a clinical trial at Dartmouth-Hitchcock.
Source: News at Dartmouth Medical School - Category: Hospital Management Authors: Tags: Multimedia News Research Video cystic fibrosis Dartmouth undergraduate Home-feature Interaction student research Source Type: news
Authors: Watanabe T, Kawai Y, Iwamura A, Maegawa N, Fukushima H, Okuchi K Abstract Traumatic brain injury (TBI) is a leading cause of death and disability in trauma patients. Patients with TBI frequently sustain concomitant injuries in extracranial regions. The effect of severe extracranial injury (SEI) on the outcome of TBI is controversial. For 8 years, we retrospectively enrolled 485 patients with the blunt head injury with head abbreviated injury scale (AIS) ≧ 3. SEI was defined as AIS ≧ 3 injuries in the face, chest, abdomen, and pelvis/extremities. Vital signs and coagulation parameter values were also ex...
Source: Neurologia Medico-Chirurgica - Category: Neurosurgery Tags: Neurol Med Chir (Tokyo) Source Type: research
Discussion “Literacy is traditionally meant as the ability to read and write. The modern term’s meaning has been expanded to include the ability to use language, numbers, images, computers, and other basic means to understand, communicate, gain useful knowledge, solve mathematical problems and use the dominant symbol systems of a culture.” The earliest written communication was in 3500-3000 BCE, with the earliest alphabet being from 1200-750 BCE. Although the percentage of the world’s adult literacy rate is increasing each decade by ~5%, “…from 55.7 per cent in 1950 to 86.2 per cent in...
Source: PediatricEducation.org - Category: Pediatrics Authors: Tags: Uncategorized Source Type: news
This report would examine developments at the state and federal-level, court cases, and current views from stakeholders. Policy Questions Which states have PAS laws and what do those laws provide? What protections against abuse of PAS?What have the Supreme Court and lower courts held regarding individuals’ rights under PAS laws? The laws themselves?Is there evidence that persons with disabilities are being denied treatment by insurance companies but offered PAS instead, as NCD predicted?How is PAS viewed by disability organizations? Has this evolved in the past 13 years? If so why? If not, why?Are persons with disabi...
Source: blog.bioethics.net - Category: Medical Ethics Authors: Tags: Health Care syndicated Source Type: blogs
One of my challenges in working with patients suffering from addictive illnesses is to help increase their motivation to stick with a long-term recovery plan. This is a significant challenge for many reasons, especially because the disease of addiction affects the brain's ability to value long term recovery. The one exception to this difficulty, in many cases, is when a female patient gets pregnant. I have witnessed women who struggled for years with an addictive illness discover they are pregnant and, when the pregnancy is wanted, are able to make incredible strides in their recovery. They are often able to maintain sobri...
Source: Healthy Living - The Huffington Post - Category: Consumer Health News Source Type: news
UR Medicine's Complex Care Center is Rochester’s first primary care practice dedicated to caring for adults with chronic childhood-onset conditions such as cystic fibrosis, sickle cell anemia, childhood cancers, autism, and intellectual and developmental disabilities.
Source: University of Rochester Medical Center Press Releases - Category: Universities & Medical Training Source Type: news
TRENTON, N.J. (AP) — The global pharmaceutical industry is pouring billions of dollars into developing treatments for rare diseases, which once drew little interest from major drugmakers but now point the way toward a new era of innovative therapies and big profits. The investments come as researchers harness recent scientific advances, including the mapping of the human genome, sophisticated and affordable genetic tests and laboratory robots that can screen thousands of compounds per hour in search of the most potent ones. "It's a very, very promising time," said Jimmy Lin, a National Institutes of Healt...
Source: Science - The Huffington Post - Category: Science Source Type: news
Funding Opportunity Number: RFA-AR-15-014 Opportunity Category: DiscretionaryFunding Instrument Type: Cooperative AgreementCategory of Funding Activity: HealthCFDA Number: 93.846Eligible Applicants State governmentsCounty governmentsCity or township governmentsSpecial district governmentsIndependent school districtsPublic and State controlled institutions of higher educationNative American tribal governments (Federally recognized)Public housing authorities/Indian housing authoritiesNative American tribal organizations (other than Federally recognized tribal governments)Nonprofits having a 501(c)(3) status with th...
Source: Grants.gov - Category: Research Tags: Health Source Type: funding
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