Ethical imperatives of timely access to orphan drugs: is possible to reconcile economic incentives and patients ’ health needs?

More than 6,800 rare diseases and conditions have been identified in the US, which affect 25 –30 million Americans. In 1983, the US Congress enacted the Orphan Drug Act (ODA) to encourage the development and ma...
Source: Orphanet Journal of Rare Diseases - Category: Internal Medicine Authors: Source Type: research