Giving thanks: Stories of volunteerism, gratitude and giving back

Thanksgiving Day is a time rich in family, gratitude and appreciation. In honor of the holiday, we are celebrating the patient families who have traveled through our doors and the selfless acts of kindness and volunteerism that follow. Donating platelets and cycling for a cause Ten years ago, Adam Nussenbaum’s son Max was treated at Boston Children’s and overcame a life threatening illness. Today, Adam gives his time — and platelets — to help those in need, and he is doing so in celebration of Max; his daughter Kate, who donated her bone marrow to help her brother; and the clinicians, who made his son’s recovery possible. Shari Abramowitz, Adam, Kate, and Max Nussenbaum For the past eight years, Adam has participated in the Pan Mass Challenge and raised over $55,000 to benefit the Pediatric Bone Marrow Transplant Center at Boston Children’s. He also donates platelets on a monthly basis. “It has been immensely gratifying to know that I have and will continue to play a small role in helping patients like Max on their road to recovery,” he says. Running for Rachel and paying it forward Rachel Solomon has been receiving care from Boston Children’s since before birth. At 2 years old, she was diagnosed with cerebral palsy, a group of disorders that affect body movement and posture, and she continues to manage other conditions including visual i...
Source: Thrive, Children's Hospital Boston - Category: Pediatrics Authors: Tags: Our Patients’ Stories bone marrow transplant cerebral palsy Dr. James Kasser Family Advisory Council Heart Center Kawasaki disease Learning disabilities NICU patient partner platelet donation scoliosis Source Type: news

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AbstractPurpose of ReviewThe goal of this review article is to highlight our understanding of potential complications after heart transplantation. We aim to discuss recent advances within the field that directly impact the management of heart transplant recipients. Our target audiences include cardiologists, emergency medicine, and internal medicine providers.Recent FindingsHeart transplantation remains definitive therapy for end-stage heart failure. Complications after transplant can be divided in to post-operative, early, and late. Complications are related to the differing physiology of the denervated transplant heart a...
Source: Current Emergency and Hospital Medicine Reports - Category: Emergency Medicine Source Type: research
Conclusions/interpretationCurrent national estimates capture about 30% of all-cause mortality among individuals with diabetes listed as underlying or contributing cause of death on death certificates. The age-standardised mortality due to diabetes as underlying or contributing cause of death and cause-specific mortality from CVD in individuals with diabetes listed as underlying or contributing cause of death plateaued from 2014 onwards except for hypertensive heart disease and heart failure.
Source: Diabetologia - Category: Endocrinology Source Type: research
AbstractPurpose of the ReviewIdentification of loci and common single-nucleotide polymorphisms (SNPs) that have modest effects on plasma lipids have been used to confirm or refute the causal role of lipid traits in the development of coronary heart disease (CHD), and as tools to identify individuals with polygenic hypercholesterolemia.Recent FindingsSeveral groups have reported on the use of SNP scores in distinguishing individuals with a clinical diagnosis of familial hypercholesterolemia (FH) with a monogenic or polygenic etiology. We review evidence that those with monogenic FH have worse prognosis and discuss the possi...
Source: Current Cardiology Reports - Category: Cardiology Source Type: research
The objective of this literature review was to provide a critical evaluation on the feasibility (i.e., accuracy and precision) of DBS for predicting tacrolimus whole blood concentrations in solid organ transplant recipients. A comprehensive systematic literature search using PubMed, Scopus, EMBASE, and Google Scholar was conducted. The primary objective was to extract the bias and precision data from the identified papers. In addition, the collection, storage, and analysis protocols were also summarized. Both adult and pediatric data were included. The reported bias data (primarily based on individual concentrations) in th...
Source: European Journal of Drug Metabolism and Pharmacokinetics - Category: Drugs & Pharmacology Source Type: research
Publication date: Available online 20 April 2019Source: Progress in Retinal and Eye ResearchAuthor(s): Junko Hori, Takefumi Yamaguchi, Hiroshi Keino, Pedram Hamrah, Kazuichi MaruyamaAbstractCorneal transplantation is the most successful solid organ transplantation performed in humans. The extraordinary success of orthotopic corneal allografts, in both humans and experimental animals, is related to the phenomenon of “immune privilege”. Inflammation is self-regulated to preserve ocular functions because the eye has immune privilege. At present, three major mechanisms are considered to provide immune privilege in ...
Source: Progress in Retinal and Eye Research - Category: Opthalmology Source Type: research
Publication date: Available online 30 March 2019Source: Clinical Lymphoma Myeloma and LeukemiaAuthor(s): Young-Woo Jeon, Seugyun Yoon, Gi June Min, Sung-Soo Park, Silvia Park, Jae-Ho Yoon, Sung-Eun Lee, Byung-Sik Cho, Ki-Seong Eom, Yoo-Jin Kim, Hee-Je Kim, Seok Lee, Chang-Ki Min, Jong Wook Lee, Seok-Goo ChoAbstractIntroductionAllogeneic hematopoietic stem cell transplant with reduced-intensity conditioning is an effective therapeutic option for patients with refractory or relapsed aggressive non-Hodgkin lymphoma (NHL).Patients and MethodsWe retrospectively evaluated survival outcomes and the efficacy of our fludarabine/mel...
Source: Clinical Lymphoma Myeloma and Leukemia - Category: Cancer & Oncology Source Type: research
This study explored the impact of motivation on the memory for delayed intentions (so-called, prospective memory, PM) in autistic individuals. Specifically, we were interested in the effects of personal (i.e., receiving a reward) as compared to social motivation (i.e., performing a favour for someone). Given the well-established theory of mind deficits in autism, we expected autistic individuals to benefit more strongly from personal than social importance manipulations, whereas the opposite pattern was predicted for controls. Sixty-one adolescents with autism and 61 typically developing adolescents participated, with each...
Source: Research in Developmental Disabilities - Category: Disability Source Type: research
April is Stress Awareness Month. When I first read that in a local newspaper, my response was “Really? As if we’re not all very well-aware that we are stressed — sometimes to the max. Do we really need a month to focus on it? Then I read what it’s actually about: April as Stress Awareness Month was initiated by the Health Resource Network in 1992 to encourage health organizations to develop and distribute educational materials and hold public events about stress. Okay. That makes sense. But as I looked at internet articles on stress, most of them stress (pun) things one can do about stress. Look and...
Source: World of Psychology - Category: Psychiatry & Psychology Authors: Tags: General Habits Happiness Health-related Self-Help Stress National Stress Awareness Month Source Type: blogs
ConclusionsThis study found that a PCC-based warfarin reversal protocol significantly reduced fresh frozen plasma utilization compared with historical controls without affecting other clinically important surgical outcomes. These data suggest that PCC is a valuable tool for INR normalization that could safely reduce fresh frozen plasma administration and offer a practical alternative to traditional approaches for INR reversal before heart transplantation.
Source: The Annals of Thoracic Surgery - Category: Cardiovascular & Thoracic Surgery Source Type: research
Publication date: May 2019Source: The Annals of Thoracic Surgery, Volume 107, Issue 5Author(s): Muath Bishawi, Giorgio Zanotti, Linda Shaw, Michael MacKenzie, Anthony Castleberry, Karsten Bartels, Jacob Schroder, Eric Velazquez, Madhav Swaminathan, Joseph Rogers, Carmelo MilanoBackgroundTricuspid valve regurgitation (TR) is a common finding immediately after cardiac transplantation. However, there is a scarcity of data regarding its implication if left untreated on long-term outcomes and the role of early surgical repair.MethodsWe retrospectively reviewed the Duke University Medical Center transplant database from January ...
Source: The Annals of Thoracic Surgery - Category: Cardiovascular & Thoracic Surgery Source Type: research
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