Qlif-17. the importance of the cern foundation adult ependymoma outcomes project

Outcomes projects can be a catalyst in determining disease and treatment-related consequences for patients with rare tumors and in identifying ways to educate patients and providers. The Adult Ependymoma Outcomes (AEO) survey uses self-reported experiences to evaluate how this tumor impacts patients throughout their illness. Patients completed the AEO survey via web-based portal. The survey includes questions on treatment, tumor recurrence, current health status, the MD Anderson Symptom Inventory-Brain and Spine Module and the MOS 36-Item Short Form Health Survey.The sample included 264 participants (female=54%), with a median age of 46 (18-77), who were married (65%) with at least a college education (37%). Radiation treatment was more commonly used in patients with brain involvement (X2 (1) =20.7, p<0.001), who underwent a partial resection (21%, X2 (3) =15.4, p<0.001), or with a grade 3 tumor (13%, X2 (2) =18.8, p<0.001). Recurrence occurred in a small group (29%), with Grade 1 tumor patients 2.6 times and Grade 3 tumor patients 2.5 times more likely to have recurrence compared to those with Grade 2 tumors. Spine tumor patients had a higher symptom burden (mean=2.8; scale 0 to 10) than brain tumor patients (mean=1.9, t (247) =-4.0) and reported more moderate to severe symptoms (rating ≥ 5) (29%) compared to their counterparts (18%). Within physical health of the SF-36, spine patients reported worse health in bodily pain (mean=49.1, v mean=72.1, t (249...
Source: Neuro-Oncology - Category: Cancer & Oncology Authors: Tags: QUALITY OF LIFE Source Type: research