The supportive care needs of parents with a child with a rare disease: results of an online survey

Parents caring for a child affected by a rare disease have unmet needs, the origins of which are complex and varied. Our aim was to determine the supportive care needs of parents caring for a child with a rare...

Source: BMC Family Practice - July 21, 2016 Category: Primary Care Authors: Lemuel J. Pelentsov, Andrea L. Fielder, Thomas A. Laws and Adrian J. Esterman Source Type: research