The Clare Project and " What Matters Most? " to young people with advanced cancer

< div class= " separator " style= " clear: both; text-align: center; " > < a href= " https://3.bp.blogspot.com/-gWJIqH68Y0U/V3Qi4DuBGmI/AAAAAAABWis/R8kB2axDhq8dBPDnQ7Vj1WjGCq4P9WRZACLcB/s1600/the-clare-project-logo-large-dark.jpg " imageanchor= " 1 " style= " clear: right; float: right; margin-bottom: 1em; margin-left: 1em; " > < img border= " 0 " height= " 240 " src= " https://3.bp.blogspot.com/-gWJIqH68Y0U/V3Qi4DuBGmI/AAAAAAABWis/R8kB2axDhq8dBPDnQ7Vj1WjGCq4P9WRZACLcB/s320/the-clare-project-logo-large-dark.jpg " width= " 320 " / > < /a > < /div > by Karen J. Wernli < br / > < br / > In the summer of 2014, my sister-in-law, a new mother, died of cancer after 11 years with her disease. Although doctors gave her the best care they could, as a health researcher focused in cancer care, I wanted to do better for people like Clare. Then, at a scientific conference that fall, I learned that others had the same desire. Representatives from the National Cancer Institute were asking for studies to improve care for adolescents and young adults, including at the end of life. On the plane home, I started working with my research ideas. I realized that to know what young people with advanced-stage cancer need, want, and value, we need to ask them directly. That ’s what the < a href= " https://www.grouphealthresearch.org/get-involved/be-part-study/clare-project/ " target= " _blank " > Clare Project < /a > is doing. < br / > < br / > I was fortunate to get support from the Group H...

Source: Pallimed: A Hospice and Palliative Medicine Blog - June 29, 2016 Category: Palliative Care Tags: cancer pediatrics tweetchat twitter young adult Source Type: blogs