Providing family-centred care for rare diseases in maternity services: Parent satisfaction and preferences when dysmelia is identified.

CONCLUSIONS: There is a need to improve the family-centeredness of care when dysmelia is identified. Offering signposting information to relevant third-sector organisations may increase parent satisfaction and address parent preferences. These findings could have implications for parents of children with other rare diseases identified in maternity services. PMID: 27156021 [PubMed - as supplied by publisher]
Source: Women Birth - Category: Midwifery Authors: Tags: Women Birth Source Type: research