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Teacher Runs 5K Months After Undergoing Double Lung Transplant

BOSTON (CBS) — For 32-year-old Eamonn Kelly, crossing the finish line during a 5K race this weekend is more than just a dream come true; it’s really a new start at life. “I’m going to set my goal and do it,” he told WBZ. Kelly was born with cystic fibrosis, a genetic disease that affects the lungs. The older he got, the more his life began to deteriorate, he said. “Before the transplant, I was on oxygen 24-7,” Kelly says. “I had to carry a tank with me and it made life difficult for me.” Refusing to accept life this way, Kelly underwent a double lung transplant at Massachusetts General Hospital exactly six months ago today. #Brighton teacher Eamonn Kelly runs 1st ever 5k@BostonCollege 6 months after undergoing double lung transplant. #wbz pic.twitter.com/FaBFrvfuQC — Kim Tunnicliffe (@KimWBZ) April 30, 2016 The science teacher at the St. Columbkille Partnership School in Brighton says he participated in a 5K race to help raise money for the school. He said he wanted to prove to himself and show his students that no matter the pain, never give up on your dreams. When he crossed the finish line, his wife was by his side. “I’m so proud of him,” says Elena Elfred. “He’s been working for this. He did better than I did.” Kelly says he hopes to inspire people to reach for their dreams and donate organs to those who desperately need them. WBZ NewsRadio 1030’s Kim Tunnicliffe re...
Source: WBZ-TV - Breaking News, Weather and Sports for Boston, Worcester and New Hampshire - Category: Consumer Health News Authors: Tags: Health Local News Seen On WBZ-TV Syndicated Local Watch Listen cystic fibrosis Kim Tunnicliffe Paul Burton Transplant Source Type: news

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A woman in her 20s with cystic fibrosis underwent bilateral endoscopic sinus surgery and medial maxillectomy 4 months after bilateral lung transplantation; at 6-week follow-up, she presented with throat pain, and 2 weeks later, with nasal obstruction. What is your diagnosis?
Source: JAMA Otolaryngology - Head and Neck Surgery - Category: ENT & OMF Source Type: research
Discussion Cystic fibrosis (CF) is an autosomal recessive disorder caused by mutations in the cystic fibrosis transmembrane receptor (CFTR). It is found in the epithelium of the bronchi, intestine, pancreatic duct and biliary tree. It regulates chloride, bicarbonate and water secretion. The heterozygous state helps prevent against secretory diarrhea, but the homozygous state causes thickened secretions in the hollow tubes of the lungs and digestive tract. There are multiple mutations (> 2000) which have been currently classified into classes depending on their protein production and activity. CF patients generally are l...
Source: PediatricEducation.org - Category: Pediatrics Authors: Tags: Uncategorized Source Type: news
We report the first case of continuous thoracic epidural analgesia after pediatric liver transplantation in a 10-year-old boy affected with CF with macronodular cirrhosis. Despite a challenging coagulation profile, the echo-assisted procedure was safely performed and allowed extubation in the odds ratio, postoperative awakening and comfort, and quick resumption of respiratory physiotherapy.
Source: Saudi Journal of Anaesthesia - Category: Anesthesiology Authors: Source Type: research
The approval of first-of-a-kind drugs rose last year to forty-one, resulting in the highest level of newly approved U.S. drugs in nineteen years. The total number of new drugs approved last year was even higher at sixty-nine. The rising figures reflect an industry-wide desire to research and develop drugs for rare and hard-to-treat diseases. The newly approved drugs serve to advance medical care and the health of patients suffering from many ailments, including various forms of cancer, heart failure, and cystic fibrosis. Additionally, more than 40% of the new therapies were approved for treatment of rare or "orphan&...
Source: Policy and Medicine - Category: American Health Authors: Source Type: blogs
Abstract A 21-year-old woman with cystic fibrosis (CF) was seen in the pulmonary clinic complaining of abdominal pain. Her past medical history included bilateral lung transplantation for CF pulmonary disease 26 months previously, as well as gastroesophageal reflux disease and pancreatic insufficiency. Her baseline weight was 49.1 kg (BMI, 19.4 kg/m2). PMID: 26527444 [PubMed - in process]
Source: Chest - Category: Respiratory Medicine Authors: Tags: Chest Source Type: research
I have been on this site a few years ago and have decided to return because I am in great need of help, guidance and advice. MY SITUATIONS: I am a 29 year old female from California. I have cystic fibrosis, cystic fibrosis related type one diabetes, I had a double lung transplant 5 years ago and now have numerous transplant complications including 2 types of aggressive skin cancer, cataracts (now currently being treated), chronic pain, osteoarthritis and chronic pain. I have a college degree in anthropology, work as a freelance writer and in customer service and work as a volunteer for several different organizations. T...
Source: Cystic Fibrosis Adults Forum - Category: Respiratory Medicine Authors: Tags: Adults Source Type: forums
I currently live in the greater kansas city area and see the KU CF team regularly. I am looking at the possibility of moving to Phoenix Arizona. I have a roommate lined up if I do but other than that I would be alone with the nearest family over 2 hours away. I have more than just my CF to contend with as well as typical CF problems with infections and viral and bacterial pneumonia within the past year. MY past PFT was only about 55% average. At the moment I am being tested for TB because of some symptoms I have been having including small portions of blood in my mucus from the lungs. Other problems i have include the rare...
Source: Cystic Fibrosis Adults Forum - Category: Respiratory Medicine Authors: Tags: Adults Source Type: forums
The diagnosis of thrombo-embolic disease in CF patients is often difficult because of overlapping symptoms/signs with CF lung disease. We, here, report on the 3 cases to raise awareness about this complication.Patient 1 is waitlisted for lung transplantation (LTx). He receives regular intravenous (iv) antibiotic courses via peripherally inserted central catheters (PICCs). Recently, 24 hrs after removal of a PICC he presented with acute respiratory distress and left-sided thoracic pain. Angio CT demonstrated pulmonary embolism (PE) in the left lower lobe.
Source: Journal of Cystic Fibrosis - Category: Respiratory Medicine Authors: Tags: Posters Source Type: research
Pain symptoms are part of daily life in adults with CF, with an important impact on QOL. The aim of this study is to compare the prevalence of pain in adults with CF, with and without lung transplantation (TX).
Source: Journal of Cystic Fibrosis - Category: Respiratory Medicine Authors: Tags: Posters Source Type: research
Chris Simon’s bucket list wasn’t anything fancy. He simply wanted to be able to ride a bike again. Or take a swim. Or go camping with friends. “Stuff I used to do all the time,” Simon said. “And all of a sudden it was taken away.” Those once simple joys were stolen by cystic fibrosis, the same disease that claimed his younger sister Emily’s life in 2009. The Simon family on Sunday will join millions of others around the world in celebrating Easter, a day symbolizing new beginnings. The holiday will have special significance for Chris, 26, who has another chapter dawning in his life...
Source: Cystic Fibrosis Worldwide Blog - Category: Respiratory Medicine Authors: Tags: Uncategorized Source Type: blogs
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