Cutting edge surgery offering Gulf Coast families new hope
It's a cutting edge surgery performed on babies that aren't even born yet, and New Orleans is one of the select cities offering this delicate technique. We'll explain how the fetal surgery is helping children diagnosed with spina bifida and the way it's helping them on their journey to developing more productive lives.
Purpose of review The aim of this article is to give an overview of recent literature on transitional care of children with complex urological disease. Recent findings Most studies on transitional care concerned spina bifida patients. Assessment of current practices revealed that formalized clinics for transitional care may improve healthcare. However, there is still little consensus among healthcare providers on how to organize transitional care. A widely recognized problem is a lack of interested, dedicated, and well-trained staff for transitional care and lifelong follow-up of complex urological patients and also a...
Publication date: July 2020Source: Research in Developmental Disabilities, Volume 102Author(s): Lucie Attout, Marie-Pascale Noël, Laurence Rousselle
AbstractAimTo compare the quality of life (QoL) in children with spina bifida with a control group of their peers using a validated questionnaire, the Neurogenic Bowel Dysfunction Score (NBDS).MethodsThe NBDS questionnaire was prospectively distributed to children attending a multi-disciplinary Spina Bifida clinic and healthy controls attending pediatric urology clinics. A score (out of 41) was assigned to each child based on their responses to the validated questionnaire. A lower score indicates better bowel function-related quality of life. SPSS software (v.25) was used for all statistical analysis.ResultsThere were 98 r...
Publication date: Available online 11 May 2020Source: International Journal of Surgery Case ReportsAuthor(s): Lionel El Khoury, Rosa Benvenga, Joel Roussel, Rodolfo Romero, Regis Cohen, Nassir Habib, Jean-Marc Catheline
Conditions: Neural Tube Defects; Spina Bifida; Myelomeningocele Interventions: Device: In Utero Endoscopic Correction of Myelomeningocele IDE - Percutaneous Technique; Device: In Utero Endoscopic Correction of Myelomeningocele IDE - Laparotomy/Uterine Exteriorization Technique Sponsor: University of Southern California Recruiting
Conditions: Open Spina Bifida; Myelomeningocele; Meningomyelocele; Chiari Malformation With Spina Bifida; Chiari Malformation Type 2 Intervention: Other: Neuropsicomotor developmental test Sponsor: Hospital Israelita Albert Einstein Completed