Assessing the feasibility of a web-based registry for multiple orphan lung diseases: the Australasian Registry Network for Orphan Lung Disease (ARNOLD) experience

We investigated the feasibility of using an online registry to provide prevalence data for multiple orphan lung diseases in Australia and New Zealand.

Source: Orphanet Journal of Rare Diseases - April 18, 2016 Category: Internal Medicine Authors: K. Casamento, A. Laverty, M. Wilsher, J. Twiss, E. Gabbay, I. Glaspole and A. Jaffe Source Type: research