The context for the thematic grouping of rare diseases to facilitate the establishment of European Reference Networks
In the past few years there has been a political imperative driving the creation of European Reference Networks as these are considered a promising way to achieve equity in access to the most up to date medica...
Source: Orphanet Journal of Rare Diseases - Category: Internal Medicine Authors: Teresinha Evangelista, Victoria Hedley, Antonio Atalaia, Matt Johnson, Stephen Lynn, Yann Le Cam and Kate Bushby Source Type: research