Activity of the alpha-1 antitrypsin deficiency registry in Belgium.

Activity of the alpha-1 antitrypsin deficiency registry in Belgium. COPD. 2015 May;12 Suppl 1:10-4 Authors: Hutsebaut J, Janssens W, Louis R, Willersinn F, Stephenne X, Sokal E, Derom E Abstract A Belgian alpha-1-antitrypsin (AAT) deficiency registry has been established in 2003. Currently 55 patients are included. At the same time, a working group has been set up for publishing national guidelines. In 2014, several Belgian patients founded Alpha-1 Global. We hope that the integrated activities of all the stakeholders involved in AAT deficiency will permit a high quality care for all patients suffering from this disabling disease. PMID: 25938285 [PubMed - indexed for MEDLINE]
Source: COPD: Journal of Chronic Obstructive Pulmonary Disease - Category: Respiratory Medicine Tags: COPD Source Type: research