NIH Rare Disease Day webcast on February 29

On Feb. 29, NIH will host a Rare Disease Day event to raise awareness about rare diseases, the people they affect and current research collaborations. An estimated 25 million people in the United States have rare diseases. The event will feature presentations, posters, exhibits, an art show and tours of the NIH Clinical Center – a hospital at which researchers are studying nearly 600 rare diseases in partnership with over 30,000 patients. The event will be broadcast online.Agenda: http://bit.ly/1JYUEQ3 Registration: http://bit.ly/1X45Z3d Watch the event live: https://videocast.nih.gov Learn more: https://ncats.nih.gov/rdd When February, 29, 2016 5:30 a.m. – 12:30 p.p. PST / 8:30 a.m. – 3:30 p.m. EST Who The event is hosted by the National Center for Advancing Translational Sciences and the NIH Clinical Center. Partner organizations include the U.S. Food and Drug Administration, National Organization for Rare Disorders, Genetic Alliance, Global Genes, Everylife Foundation for Rare Diseases, and Uplifting Athletes. Speakers will include: Congressman Leonard Lance, (NJ-07), co-chair of the Rare Disease Caucus NIH Director Francis S. Collins, M.D., Ph.D. NCATS Director Christopher P. Austin, M.D. NIH Clinical Center Director John I. Gallin, M.D. Patients will be available to tell their rare disease stories. The National Center for Advancing Translational Sciences is a distinctly different entity in the research ecosystem. Rather than targeting a particular disease o...
Source: Dragonfly - Category: Databases & Libraries Authors: Tags: Health Literacy/Consumer Health News from NIH Source Type: news