In their own words: Six families share the impact of organ donation

This is the season for gratitude and giving, a time to celebrate friends, family, the end of one year and the beginning of a new one. But for a select group, it also is a time to celebrate one of the greatest gifts — the gift of life through organ donation. Mickey was born with a unique combination of congenital heart defects and spent most of his early life at Boston Children’s. He was one day shy of 6 months old when he received his heart transplant, and his family is grateful for every day since. “Mickey has shown us what courage and resiliency look like, and his transplant has taught us the true meaning of giving. He has touched so many lives and because of him, we have met so many amazing children and families, whose hearts and hopes far surpass their diagnoses.” Laura received her liver transplant shortly after being diagnosed with biliary atresia. Though her family doesn’t know who her donor was, they do know it was a child around that same age and are so grateful that parents could open their hearts to save a stranger’s child in a time of grieving. She is fortunate to have encountered minimal complications post transplant, and her sister has been inspired to study medicine and one day become a doctor. “We always talked about being organ donors before Laura’s transplant, but now we’re advocates. You look at things differently when your own child is sick, and you learn to appreciate every little moment, becau...
Source: Thrive, Children's Hospital Boston - Category: Pediatrics Authors: Tags: Diseases & Conditions Our Patients’ Stories double lung transplant heart transplant hepatoblastoma kidney transplant Liver transplant multivisceral transplant Pediatric Transplant Center (PTC) Source Type: news

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An experimental treatment for multiple sclerosis is showing promise in stopping symptoms of the disease. A new study finds a single stem cell transplant could stop or delay symptoms better than some medications. Dr. Tara Narula reports on the procedure that could be life changing for some of the 2.3 million people affected by MS.
Source: Health News: CBSNews.com - Category: Consumer Health News Source Type: news
Authors: Chowdhury S, Bhattacharya K, Mandal C, Mondal S, Sarkar S, Chandra S, Banerjee S, Mandal C Abstract Umbilical cord blood (UCB) is a powerful storehouse for normal CD34+ haematopoietic stem cells (HSCs), often used for allogeneic bone marrow (BM) transplantation in malignant and non-malignant diseases. The glycomic especially the sialoglycomic aspect of these HSCs has been unravelled in this study. Cell surface expression of the glycans with the related enzymatic activities has been compared with the BM of childhood acute lymphoblastic leukaemia, a common BM-associated malignancy. An enhanced cell surface e...
Source: Advances in Experimental Medicine and Biology - Category: Research Tags: Adv Exp Med Biol Source Type: research
Authors: Hellwinkel JE, McCarty EC, Khodaee M Abstract Sports-related injuries to the shoulder are common causes of disability. Injuries to the sternoclavicular joint (SCJ) in sports are more rare, though have been reported in a small number of cases. SCJ injury classification is determined by the degree of joint displacement and direction of clavicular displacement. Direction of displacement is particularly important due to risk of injury to intrathoracic structures, which has the potential to result in fatal outcomes. These injuries are important to identify in athletes and can be difficult to assess on the field...
Source: The Physician and Sportsmedicine Online - Category: Sports Medicine Tags: Phys Sportsmed Source Type: research
Publication date: Available online 16 January 2019Source: Life SciencesAuthor(s): Nadezhda M. Zakharova, Yury S. Tarahovsky, Irina S. Fadeeva, Natalia P. Komelina, Maxim O. Khrenov, Olga V. Glushkova, Dmitry A. Prokhorov, Viktor P. Kutyshenko, Anatoly L. KovtunAbstractAimsTo initiate a state of artificial torpor we suggested a pharmacological multi-targeting strategy for simulation of the physiological pattern of natural hibernation including a significant reduction in heart rate, respiratory rate, body temperature and oxygen consumption as well as a decline in brain activity known as torpor.Materials and methodsWe have de...
Source: Life Sciences - Category: Biology Source Type: research
Authors: Mize M, Bryant DP, Bryant BR Abstract Students with reading learning disabilities (RLDs) often face struggles in acquiring basic reading abilities, including oral reading fluency. The current study builds on previous work that compared peer-assisted instruction (PAI) to iPad-assisted instruction (IAI) on oral reading fluency, which led to the conclusion that a combined approach may be more effective than either approach alone. A multiple baseline design was used to examine the effectiveness of a combined PAI and IAI approach on oral reading fluency of four 5th grade students with RLD. Overall, there were m...
Source: Assistive Technology - Category: Rehabilitation Tags: Assist Technol Source Type: research
In this study, a NMR-based metabonomic strategy in combination with high-throughput RNA-Seq was employed to investigate global metabolic changes of plasma and liver in a typical cold water fish species lenok (Brachymystax lenok) subjected to a sub-lethal high temperature. Our results showed that thermal stress caused multiple dynamic metabolic alterations of the lenok with prolonged stress, including repression of energy metabolism, shifts in lipid metabolism, alterations in amino acid metabolism, changes in choline and nucleotide metabolisms. Specifically, thermal stress induced an activation of glutamate metabolism, indi...
Source: Comparative Biochemistry and Physiology Part D: Genomics and Proteomics - Category: Genetics & Stem Cells Source Type: research
BACKGROUND: Several studies have been conducted regarding people with disabilities, however no studies have estimated the disease burden due to premature death. As such, we aimed to compare the years of life lost (YLLs) due to premature death between a pop...
Source: SafetyLit - Category: International Medicine & Public Health Tags: Economics of Injury and Safety, PTSD, Injury Outcomes Source Type: news
BACKGROUND: Although access to reliable transportation is an essential component of quality of life, young people with disabilities encounter many transportation-related obstacles. OBJECTIVE: To explore solutions to the challenges that youth with d...
Source: SafetyLit - Category: International Medicine & Public Health Tags: Age: Adolescents Source Type: news
Perry Wilson dissects a new JAMA study that is seemingly about nonmyeloablative hematopoietic stem cell transplantation vs disease-modifying therapy for relapsing-remitting multiple sclerosis.Medscape
Source: Medscape Radiology Headlines - Category: Radiology Tags: Hematology-Oncology Commentary Source Type: news
CONCLUSION: DN without eliciting LTR has superiority over the DN along with eliciting LTR while the treatment aimed to receive long-term effects. PMID: 30636729 [PubMed - as supplied by publisher]
Source: Journal of Back and Musculoskeletal Rehabilitation - Category: Orthopaedics Tags: J Back Musculoskelet Rehabil Source Type: research
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