Rettsyndrome.org invests $65,000 to support additional sites for natural history study

(International Rett Syndrome Foundation) Last year, the NIH National Center for Advancing Translational Science Rare Diseases Clinical Research Network funded the development of a consortium made up of 11 sites to study the natural history of Rett syndrome, MECP2 Duplication, CDKL5 disorder, and FOXG1 syndrome under their strong belief that collaborative activities are necessary to advance rare disease research. As a private rare disease foundation, Rettsyndrome.org knows that the benefits of partnering with other organizations dedicated to MECP2 and related disorders research are immeasurable.
Source: EurekAlert! - Medicine and Health - Category: Global & Universal Source Type: news