Pancreatic Sufficient and Kalydeco

Hello, Well by some miracle (namely our saintly CF doc) my older son got Kalydeco off label despite only having one known CFTR mutation. He starts tomorrow. I was wondering if anyone else like him (Pancreatic Sufficient) has taken Kalydeco? If so, have you found that eating certain foods with it make it more effective? My son does not have a problem keeping on weight (he is on the chubby side) but he does have intestinal issues when he has a high carb, low fiber diet. He has been doing well with a low Glycemic Index diet when he complies with it (when he doesn't he is on the toilet a lot). But I was wondering what kind of diet he should have for the Kalydeco. Should he make sure he takes it with food, and specifically with fat? I don't think our center has had anyone who is PS take Kalydeco before. Also any tips on things to do when starting it would be so helpful. It is finals week at his college, so not the best time to start. However, I don't think we can bear to wait. He has been sick and depressed for a long time now. Thanks!!! Fel
Source: Cystic Fibrosis Adults Forum - Category: Respiratory Medicine Authors: Tags: Adults Source Type: forums