Behind a handicap sticker is an untold story

I was attending a 50th birthday party for a friend of mine, when I struck up a conversation with someone I had never met. The conversation, of course, was with a woman who seemed genuinely interested in my quest to make air travel safer for those with food allergies. I told her how my family often receives dirty looks from other passengers when we pre-board a plane to wipe down the area for nut residue. I discussed how some people have laughed when asked not to open nut containers in the confined environment of an airplane. It is often hard to convey the seriousness of a life-threatening food allergy because it is a mostly an invisible disability. Then, she began to tell me her own story, or rather that of her daughter. Let’s call her Ashley. Ashley works at one of the big New York City financial firms, which is quite an accomplishment, since Ashley suffers from cystic fibrosis. Ashley deftly manages her disease by employing various techniques to conserve her energy. She intentionally conceals her daily struggles from coworkers so that she both appears and is treated as normal as possible. Her diagnosis entitled her to receive a handicapped sticker for her car, which is logical, because the more she walks, the more fatigued she becomes. She was thankful for the opportunity to reduce her walking to the bare minimum. However, Ashley had started to refuse to use the sticker. Why? It seems she receives so many dirty looks and nasty comments that she was intimidated when she...
Source: Kevin, M.D. - Medical Weblog - Category: Journals (General) Authors: Tags: Patient Patients Source Type: blogs

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This study aims to examine the effectiveness of the postural treatment of the Mézières method on elite rhythmic gymnastics athletes with low back pain. DESIGN: Double-blind, randomized, controlled trial. SETTING: The sports hall of "Puente Tocinos," Murcia, Spain. PARTICIPANTS: Ninety gymnastics athletes were randomized into 2 parallel groups (intervention: n = 39; control: n = 51), of whom 98.9% were women (women = 89; man = 1). INTERVENTION: The Mézières method postural therapy was implemented. It lasted about 60 minutes in repeated sessions of 2 to 3 meetings per wee...
Source: Journal of Sport Rehabilitation - Category: Sports Medicine Tags: J Sport Rehabil Source Type: research
This study investigated the therapeutic effects of human breast milk stem cell (BMSC)-conditioned medium (BMSC-CM) in a model of spinal cord injury (SCI) in male Sprague-Dawley rats. Overview of Literature: SCI is one of the leading causes of disability in addition to sensory and motor impairment. So far, there have been no successful treatments for SCI. Given the positive outcomes associated with using stem cells and their derivatives as a treatment for various diseases, there is a growing interest in using them as an SCI treatment. Recent research has demonstrated that CM from stem cells has therapeutic advantages. ...
Source: Asian Spine Journal - Category: Orthopaedics Tags: Asian Spine J Source Type: research
[IPS] Nairobi, Kenya -For each of the 830 women dying each day from pregnancy complications and childbirth, an estimated 20 others suffer serious injuries, infections or disabilities.
Source: AllAfrica News: Health and Medicine - Category: African Health Source Type: news
ConclusionCFTR could inhibit cell autophagy by enhancing PI3K/AKT/mTOR signaling pathway, thereby playing a protective role in LPS-induced ALI in mice.
Source: Respiratory Physiology and Neurobiology - Category: Respiratory Medicine Source Type: research
Authors: Malone Q, Passmore S, Maiers M Abstract Different techniques used to analyze and reduce accelerometer data may impact its interpretation. To determine which variables were impacted by changing analysis parameters, the authors performed a secondary analysis of data gained from a clinical trial conducted on older adults (aged ≥65 years; M = 71.1 and SD = 5.3; n = 100) with neck and back disabilities and compared the effects of two different cut- point sets (Matthews and Freedson sets) commonly used to analyze older adult accelerometry data. The Matthews set was found to assign significantly greater m...
Source: Journal of Aging and Physical Activity - Category: Geriatrics Tags: J Aging Phys Act Source Type: research
Publication date: Available online 11 November 2019Source: NeuroImage: ClinicalAuthor(s): Franck Amyot, Kimbra Kenney, Emily Spessert, Carol Moore, Margalit Haber, Erika Silverman, Amir Gandjbakhche, Ramon Diaz-ArrastiaAbstractTraumatic cerebral vascular injury (TCVI) is a frequent, but under-recognized, endophenotype of traumatic brain injury (TBI).  It likely contributes to functional deficits after TBI and TBI-related chronic disability, and represents an attractive target for targeted therapeutic interventions. The aim of this prospective study is to assess microvascular injury/dysfunction in chronic TBI by measur...
Source: NeuroImage: Clinical - Category: Radiology Source Type: research
Conclusions: Our finding along with previous studies provide more evidence of the clinical heterogeneity of diseases caused by mutations in PNKP which makes its clinical diagnosis difficult and highlights the importance of genetic testing to unravel the cause of these diseases. PMID: 31707899 [PubMed - as supplied by publisher]
Source: Fetal and Pediatric Pathology - Category: Pathology Tags: Fetal Pediatr Pathol Source Type: research
Publication date: Available online 11 November 2019Source: SeizureAuthor(s): Colin Reilly, Tove Hallböök, Gerd Viggedal, Bertil Rydenhag, Paul Uvebrant, Ingrid OlssonAbstractPurposeThe aim of this study was to compare parent-reported Health Related Quality of Life (HRQoL) and behaviour of young people before (baseline) and two years after paediatric epilepsy surgery (follow-up).MethodsThe parents of 107 children who underwent epilepsy surgery completed surveys focussing on different aspects of child HRQoL and behaviour at baseline and follow-up. Parents of children with multiple disabilities (n = 27...
Source: Seizure - Category: Neurology Source Type: research
ConclusionIn our cohort, NTZ associated IRR mainly occurred during the infusion period compared to the one-hour observational period. Also, the first IRR exclusively occurred within the first 4 NTZ administrations. However, further multi-center studies with a larger sample size are needed to capture rare and serious events that could emerge during the observational period and to make clinical recommendations.
Source: Multiple Sclerosis and Related Disorders - Category: Neurology Source Type: research
ConclusionsAlemtuzumab appears to be an effective and safe short-term therapeutic option both as a rescue therapy for the disease flare-up associated with fingolimod withdrawal, as well as for the reversal of the deteriorating course observed in patients who fail treatment with fingolimod.
Source: Multiple Sclerosis and Related Disorders - Category: Neurology Source Type: research
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